Monthly Archives: July 2018

HOW MUCH LONGER?

I grow more tired every single day. My Dad grows more difficult to deal with each day. The pain medication mixed with anti-anxiety medication has changed his personality even more.

I find myself jumping at his voice and trying to make myself invisible when he’s around. I cringe when he slams doors and growls at the smallest things. I know he’s in pain but none of this is helping me.

Where are my siblings? My brother is somewhere in the state but I haven’t heard from him in at least 8 months. He never called to wish my Dad a Happy 75th Birthday in June and he hasn’t been by to get his mail.

My twin sister didn’t call my Dad on his birthday either. She called after his birthday or said she would. We are having a tough time. I need help with my Dad and she refuses. She lives 10 minutes away and doesn’t work. She did say that her “Mono” became active again and she had to rest. I then find out that she’s at her mother-in-law’s beach house with the kids going to all these events. Not resting.

My Dad fell out of his truck after dialysis the other day and couldn’t get himself up from the hot pavement in our driveway. I couldn’t hear him yelling my name. He eventually crawled to the door. One arm was covered in blood and missing the skin on his entire bicep. I couldn’t stop crying while I cleaned him up and bandaged everything. Of course he yelled at me to “Quit your crying!”. He’s my Dad, I couldn’t help it.

I can’t watch another parent die. I’m not healthy enough. My last stent exchange didn’t go well. It was done May 20th and I’m still urinating mostly blood (sorry for the over sharing). I also have a lot of pain in my back and pelvis. I know something is wrong but I can’t take care of it right now. My Dad is going for Injection Therapy on his back on the 31st. I have to take him. I hate the hospital he’s having it done at, it’s where my Mom passed away, it’s where I died for a short time when I went into Kidney Failure, and it’s where nurses commented on my mental health in front of me.

I’m tired, lonely, angry, disappointed, and keep wondering why I’m fighting so hard.

People go out of their way not to talk to me. It isn’t because of anything I’ve said or done. It’s because of what I might say or do. And that’s the worst part of all.6fdde65c60ad6b93a59fc21b54fa7621

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WIDE AWAKE ROTTING

I don’t know why I blacked out. If it was the stress of dealing with my dad, the heat, me not feeling well, all I know is that I woke up on the floor.

When I woke up on the floor of my bedroom it was like I was somewhere else. I didn’t recognize this disgusting place filled with bags and bags of empty water bottles, paper towels, cigarette butts and ashes that had taken over the room. But it was my room. I had let it GET THAT BAD. I kept ignoring it or I didn’t want to see it. The shame of finally seeing what I let happen was too much. I had to leave it a little longer and remember what had triggered me in the first place.

I know I’ve been allowing people, places, and things said, get to me when I shouldn’t. I exist with every nerve ending exposed, my heart on my sleeve, and no protection. I always have, I also replay conversations and events in my mind that I feel were hurtful or that I deserved. (the key words are “I” and “I” am not a good judge because I am so sensitive) It’s probably one of the worst parts about it all, the constant film running in the background of my mind. It’s been the hardest thing for me to control or find coping skills that actually work.

Music, coloring, and research, work depending on the day. With an autoimmune disease, kidney disease, and medical disorders having to do with my blood that can’t be explained, my medications work at different levels in different ways.

One of my doctors believes part of my Conversion Disorder comes from watching my Mom die. Not just the horrible way she died in the hospital but the way she slowly killed herself at home.

She knew everything she had to avoid to stay alive, she knew everything she had to do to stay alive. I knew when she gave up. When she started staying in her room all the time, stockpiling food she wasn’t allowed to eat and not talking to anyone.

At the time I was working 60 hours a week and trying to maintain my alcoholism.

My mom was never thin but started to gain weight rapidly. This made it harder for her to breathe and put stress on her heart. Her bones were brittle and weak from chemo and radiation she had 7 years before. We were so lucky she even survived, most people don’t. I don’t know what it was that made her give up after fighting so hard previously.

When she fractured her back it was the beginning of the end. She would lose control of her bladder and bowels. She cried, moaned and screamed in pain all night long. Nothing we or the doctors did gave her any relief. They decided to do surgery even though she wasn’t healthy enough for it.

She made it through the surgery but the weight gain and immobility made it so hard for her to breathe she felt like she was suffocating. It was her biggest fear.

I now see some of the same behavior in my Dad and it scares me. It’s the opposite with him, he’s lost a lot of weight and does too much. He has old fractures in his back that he chose to ignore over the years. This time his sciatic nerve is being compressed so he can’t ignore it. He’s fallen down numerous times and doesn’t tell me unless I see blood and bruises. Yesterday he was stuck on the pavement of our driveway for over an hour bleeding from a large wound on his arm. He fell out of his truck coming back from dialysis.

He refuses to go to the hospital.

I called my twin sister to let her know what was going on and I might be taking him to the ER. She never called or texted back. Once again I’m left to deal with watching a parent die. Only this time I don’t think I’ll handle it at all.

My Dad and I are close. I told my Mom everything but my Dad and I have a lot in common. When I quit drinking for the last time he watched movies I know he had no interest in, same with TV shows, just to keep me company. He’s never given up on me. It’s only been these last 2 years that we’ve really argued and that’s due to both of our illnesses.

I want to live my own life.

I’m just not sure if I deserve to.

I destroy everything around me or they leave.


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