Tag Archives: Family and Friends

HOW MUCH LONGER?

I grow more tired every single day. My Dad grows more difficult to deal with each day. The pain medication mixed with anti-anxiety medication has changed his personality even more.

I find myself jumping at his voice and trying to make myself invisible when he’s around. I cringe when he slams doors and growls at the smallest things. I know he’s in pain but none of this is helping me.

Where are my siblings? My brother is somewhere in the state but I haven’t heard from him in at least 8 months. He never called to wish my Dad a Happy 75th Birthday in June and he hasn’t been by to get his mail.

My twin sister didn’t call my Dad on his birthday either. She called after his birthday or said she would. We are having a tough time. I need help with my Dad and she refuses. She lives 10 minutes away and doesn’t work. She did say that her “Mono” became active again and she had to rest. I then find out that she’s at her mother-in-law’s beach house with the kids going to all these events. Not resting.

My Dad fell out of his truck after dialysis the other day and couldn’t get himself up from the hot pavement in our driveway. I couldn’t hear him yelling my name. He eventually crawled to the door. One arm was covered in blood and missing the skin on his entire bicep. I couldn’t stop crying while I cleaned him up and bandaged everything. Of course he yelled at me to “Quit your crying!”. He’s my Dad, I couldn’t help it.

I can’t watch another parent die. I’m not healthy enough. My last stent exchange didn’t go well. It was done May 20th and I’m still urinating mostly blood (sorry for the over sharing). I also have a lot of pain in my back and pelvis. I know something is wrong but I can’t take care of it right now. My Dad is going for Injection Therapy on his back on the 31st. I have to take him. I hate the hospital he’s having it done at, it’s where my Mom passed away, it’s where I died for a short time when I went into Kidney Failure, and it’s where nurses commented on my mental health in front of me.

I’m tired, lonely, angry, disappointed, and keep wondering why I’m fighting so hard.

People go out of their way not to talk to me. It isn’t because of anything I’ve said or done. It’s because of what I might say or do. And that’s the worst part of all.6fdde65c60ad6b93a59fc21b54fa7621

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You Stopped Trying Goes Both Ways

I am told often to “Stop living in the past”. Why people assume that I can click these emotions and memories on and off whenever I want I don’t know. The truth is I can’t.

I’m told by my Dad and my twin sister that I’m trying. There must be something more I can do. My one friend has said this also but she understands a lot more than my family. Maybe because she was there for most of it or because when I drank I didn’t hide anything.

I do feel an extreme amount of guilt and grief. The death of my Mom was harder on me than anyone knew. No one understands what I had to see and do when she died. They don’t understand what it was like in the years before her death. They don’t know what I was going through because I never said anything.

I always joked that my twin stole my backbone in the womb. She’s always had twice the backbone while I had none. I had liquid courage. That doesn’t really count.

My entire life I’ve felt invisible, mute, or ignored. I would try to say something and people would talk over me. I have a quiet voice almost like a child.

One employer told me that I should practice changing my voice if I wanted to be taken more seriously. It was a woman who said this. How do you change your voice at 30?

A few years into my alcoholism anyone around me when I was drinking knew when to take me seriously. I admit I liked it for a little while. In the end I didn’t want to be that person and it only caused me great pain.

In the present I have no joy, no pain, nothing. I don’t have friends to talk to or family to talk to. I probably live in the past because it’s when I had the most joy and pain.

It only takes a song, a scent, or a story on the news to trigger the past then I’m snowballing all the emotions at once. It isn’t exactly fun.

When I do go out in public I find myself talking too much and too loud to strangers. I’m over stimulated by the lights and sounds. I feel foolish after and stay home for longer periods of time.

No one takes me seriously either.

My dad had 20 of his birds killed by a weasel recently and was upset. I looked up everything I could about weasels and wrote down what was important. It took a few hours and 3 pages. I tried to show my Dad but he wouldn’t read it. I tried to tell him some of the important things like when he sets the trap he can’t handle it with his bare hands. He brushed me off.

This morning 5 more birds were killed and nothing was in the trap. I asked him if he wore gloves when he handled the trap. He said “No”. I told him he was supposed to and he then became angry at me.

My twin is upset because she has PED related to Chronic Fatigue so I researched all the new information on it, wrote it up and sent it to her in an e-mail. She never responded. I forgot to mention that she asked me to do this.

I don’t want to bother anymore. I want to disappear and see how long it takes for them to wonder where I am or care.

My sister also said she’s glad we were separated in kindergarten because she never wanted to be a twin. She said I have separation anxiety when it comes to her and she can’t handle it. I never asked her to. I only wanted her to be my sister and love me. She said I watch too many movies.

I wish it had been her at the Hospital that night watching our Mother die. Bubbles of blood coming out of her mouth as her empty beautiful blue eyes stared at the ceiling. The nurses laughing and drinking coffee, my father falling to the floor making a noise not quite human more of howl. I couldn’t move in that moment. I stood there recording the scene in my brain to be processed later. Only I’ve never really processed it.

Comments at the wake made to me were “You’re taking this well”. I was. Because to me it didn’t happen. I had to take care of my Dad, make sure my brother wasn’t too wasted, and my sister was over medicated with an infant. What was I supposed to do? The last funeral with my brother at it ended with the casket tipped over and him punching my Dad in the face. My Mom kept everything together.

Right now I can barely make myself a bowl of cereal.

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TALKING TO MYSELF

I hate repeating myself. I have a hard enough time getting a complete sentence out as it is. When I have to repeat myself three or four times it isn’t only difficult in a cognitive way but thoughts of unworthiness start creeping into my head. Of course this will snow ball to the point where I’m convinced the people left in my life are tired of dealing with me so they pretend I’m not here. I’m invisible so I talk to myself. Sometimes I forget I’m in public when I do it. It isn’t often I’m in public, only 2 to 3 times a month but it’s still embarrassing.

I felt okay yesterday and this morning but now I’m overwhelmed by sadness. I miss my Mom. I miss her hugs, I rarely get hugs since she passed away. I miss watching her graceful hands as she did jewelry, knit, cooked, or held my hand. I miss how she would tell my Dad off and he would listen. He’s angry all the time now so I walk on eggshells all the time. It’s more like landmines. He’s always been intimidating.

Knowing how people see and think of you is the hardest part. One of the biggest problems is the misconception that the labels that have been put on me equate me with a lower IQ. It’s the exact opposite. I’m too observant, intuitive, I love to research and learn about specific subjects, I pick up on social queues, I just keep it to myself.

I know my sister doesn’t want to be around me. My Dad feels guilty and like he’s stuck with me. I used to get 10-20 phone calls a day from different people to see what I was doing. In the last 9 years I’ve had about 10 total calls from my 1 best friend to check if I’m still alive.

I might be alive but this isn’t living.

I can’t motivate myself to get out the door. The last time I did it was because I was going to a concert out of state and had backstage passes. Stuff like that doesn’t happen anymore. I thought of going to Salem, MA because I used to love it there but I would rather go to New Orleans. I’m not sure how safe a trip there would be for me.

So today I’m kind of stuck in the middle of nowhere.


The Sound Of Silence And Reaching Out

One of the first songs I ever heard that for some reason I found myself relating to was Metallica’s “The Unforgiven”. The lyrics touched something in me that at the time I couldn’t describe. I was drinking daily at that time in my life to make myself feel numb to the pain inside and to act normal on the outside. The chorus itself struck me pretty hard.

“What I’ve felt, what I’ve known, never shined through in what I’ve shown. Never Be. Never See. Won’t see what might have been”

Other parts of the song resonated with me also. This will just be random lines from the song that have meaning to me.

“Through constant pained disgrace, the young boy learns their rules. With time the child draws in. Deprived of all his thoughts, the young man struggles on and on he’s known.”

“He tries to please them all. This bitter man he is. Throughout his life the same. He’s battled constantly, this fight he cannot win, a tired man they see no longer cares”

When I was younger I never showed anyone who I was. I tried to never stand out in any way. I was a mediocre student who hid in the back of every class. While drinking I wasn’t the “real” me either. I could’ve done more with my life if it had been possible.

Today I left a message for myempathyblindness best friend telling her I loved her and not to worry, I also said she didn’t have to call me back. I also left a message for my sister saying the same.

My best friend called me back and her first words were “I’m worried. I don’t like how you sounded in your message. What’s going on?”. I didn’t lie this time. I told her that mentally and physically I am not doing well and I’m afraid. She’s known me for 30 years and has seen me after I have tried to hurt myself several times. So even though we don’t talk all the time she has seen first hand more than anyone what I’ve been through. She has been the only one at times to show any empathy or compassion at all. Sometimes I don’t know how she managed to stay with me for so long. I know we had a lot of fun times but the bad times where I scared her would have been enough to drive anyone away.

My sister didn’t respond at all.

 

 


I WANNA NEW DRUG

This post won’t be popular. I would like to say that this bothers me but right now I’m too hurt about so many other things. First topic is easy ALCOHOLISM.

I hated AA. I tried it on many occasions either by choice or court ordered. So we are clear here there are female alcoholics that drink just as much as men. I’ve had people say to me “You’re not an alcoholic. What? Did you have a few too many glasses of wine?”. That is still the perception of a female alcoholic. Wine does count just as much it just wasn’t my choice. I even had the same mistaken thoughts about it.

I drank beer and hard liquor. When I recently visited relatives in Florida and mentioned to my Aunt what and how much I used to drink she was shocked. I thought she knew. They sell alcohol in almost every store in Florida. My Aunt had worked at a Market and knew the brands of liquor. When I told her I was up to about a case of beer and a pint of Ginger flavored brandy, Firewater, Jager, or many shots of Patron, it put it in perspective for her. She asked “Not wine then?”. No never wine. In my mind wine was for those people who were “weak”. I know I’m an idiot. Wine is still alcohol and can get you drunk just the same.

AA wasn’t for me because other people’s stories didn’t have an effect on me. The strong religious factor that they insisted wasn’t there but was, really bothered me. Sponsors telling me to get on my knees before bed and pray to God for my sobriety bothered me. When I left for the last time and my sponsor told me I would fail and have to beg God for forgiveness I had enough. It was a bad day at work, my mother was ill again and I was barely hanging on. I told her “It’s a good thing I’m an Atheist then huh?” and never looked back.

I was diagnosed as Bipolar and it shined a light on why I was drinking and doing the things I did. A lot of stuff made sense to me. So much so that the smell of alcohol turned my stomach. Will I never drink again? I’m not stupid enough to make that promise. I can say that right here, right now, today, I will not be drinking. That has worked for 8 years.

FAMILY AND MENTAL ILLNESS is an entire different story. Most of my family thinks I should be “better” or “cured” by now. It doesn’t work that way. There are a million and one factors that go into a diagnosis and most of them are wrong. There’s Genetics, your environmental surroundings when younger, trauma, when you first presented with symptoms, when you were diagnosed, what meds were you on before being correctly diagnosed, how long did it take for a correct diagnosis, did you have other disorders or illnesses coinciding with the mental illness like a drug or alcohol problem, or anxiety, or PTSD.

All of these things make a difference. A few years ago my twin sister was diagnosed with Conversion Disorder. She said she couldn’t remember little things. Two of her fingers would tremor, her eyelids would flutter or she would stare into space. She would come out of it and be tired not remembering it. She had a machine attached to her at home for 48 hours to detect any abnormal brain waves or seizure like activity. It came back negative. She had a sleep study done at the hospital hooked up to monitors that came back negative. Many tests were run until finally the Doctors told her she had Conversion Disorder due to stress which was causing these incidents that no one could find evidence of.

I was with her for 2 of them. She is my twin. I know her like the back of my hand. I know that when we were little and even as we grew older she was referred to as the “Drama Queen”. I watched the 2 fingers and her eyelids. I watched her breathing and how she acted when she came out of it. I admit that I tested her one time in the middle of an episode and she snapped right out of it because she thought her son was in trouble. There was no confusion, no “I have to take a nap, I feel so weak”, she was her usual self.

She received Disability faster than I did. She had no Hospitalizations, suicide attempts, lost jobs, etc. I had it all plus Shock Therapy. My judge made fun of me while she sailed right through. I bring it up because recently as she told me to “Put my big girl pants on and deal with things” she also said she had Conversion Disorder also but she was fine and was able to “overcome” her illness. Then why isn’t she working I wonder? I was given another ultimatum to either put myself in the Hospital or go to Therapy (I have to show proof) or she won’t be in my life. What gives her or anyone the right to threaten or give me ultimatums? The reason I cry so much is when I talk to her I can hear the disdain in her voice. I can hear how annoyed she is. There is no sympathy. There is no affection. There is no love. That is why I cry.

I have been to more Therapists that I can count. I have been to more Doctors than I can count. I have been told by at least 2 that some people are just resistant to Therapy and Medications depending on when they were diagnosed, how long they had symptoms of being Bipolar before getting a correct diagnosis, if they had other illnesses like Alcoholism or Conversion Disorder alongside the Bipolar Disorder, and there is also the fact that having Celiac Disease doesn’t help and neither does Stage 3 Chronic Kidney Disease.

So I want a new drug. One that won’t make me think. One that won’t me feel or remember. One that doesn’t cost too much. One that takes the pain away. And one that preferably won’t make me drool on myself. I’m tired of crying. I’m tired of apologizing for existing. I’m tire of seeing the look of pain and blame in my dad’s eyes. Most of all I’m just tired.


ALCOHOLISM, MEDICATIONS, LYING, AND LIFE

I took a trip recently to Florida for some me time and to see a concert. About 2 months before I left I had noticed that in the mornings my behavior was horrible. I would pick fights with anyone who happened to be in front of me. This feeling would lessen as the day went on. My dad had noticed it also because I live with him.

I had looked up one of my medications, Topamax, and found many patients had the same reaction I did after being on it for a long period of time. Topamax was originally a seizure and migraine medication. Now it is used as a mood stabilizer and one part of a prescription weight loss drug.

I stopped taking it without telling my Doctor. Why didn’t I tell him? Probably because at every visit he will ask ” Have we tried you on BLANK?” How am I supposed to remember every medication he’s ever put me on? He has the computer right in front of him. I remember some of the really bad ones like Brintellix. But not all of them. I have tried at least 25 different combinations in the last 6 years plus ECT. You would think he would have my file ready before my appointment so he can see for himself what I have been on.

I started taking the Topamax again because I started having the problem. Biting everyone’s head off and my moods changing frequently. I was really good until about a week ago. I am really tired of medications. I’m tired of people asking me about my medications. “Did you take your meds today?”.

The Topamax is also used for alcoholism. It wasn’t given to me for that but was a side benefit. While I was on it I had no desire, want, or need, for alcohol. Lately I feel the opposite. I have been under an extreme amount of stress with my dad’s health, family arguments, isolation, and everyday crap. I have not drank since the one time in Florida but the need is there a little bit. I admit that when I think about it I want to vomit.

I hate when people lie to me. I know I have said this before but it continues to happen. No one wants to deal with my dad but you can bet that if something happens they will be the first ones here looking for money or anything else of value. It makes me extremely angry.

Trying to control my anger lately has been difficult. I go to my room and scream into my pillow when it gets too bad. If I wasn’t so tired, scared, and lazy I would find someone to talk to.


Manic Times

I recently stopped taking my mood stabilizer Topamax. Due to a problem with my insurance I couldn’t afford it for a week. During that time my morning crying and irritability seemed to disappear. When I worked the insurance problem and started taking it again the crying and anger came back.

I now feel better but I think I might be in Manic mode. I am more impulsive, my judgement isn’t exactly great, and I just want to run. I want to do things I never got to do and my mind races with ideas. The only thing stopping me is my health and money. I’m agitated and can’t sleep. I looked into flying to Florida for a Rock Festival by myself. I don’t know if this is good or bad. I have not been socially active in years. I’m always afraid my dad will get mad if I go out during the night. He thinks this is the only time people will drink. If I mention a concert or something similar he gets upset. I have stopped living so I don’t rock the boat with him. I have no friends left and my family doesn’t really like to spend time with me. I’m too sensitive and dramatic. They limit themselves to a quick text.

With my health problems and the future being unclear I don’t understand why I can’t take a trip or do something I used to love. There are always a hundred questions. No one thinks I can handle a social environment sober. After seven years of sobriety how am I to know if I stay home much of the time. I only leave the house for groceries. This isn’t living.

I also can’t trust myself to know if this is the Manic part of me or if I really do want to join the land of the living again.


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