I recently met with a new Urologist. This is my fifth. The primary Urologist I had was the type of doctor that saw two things when he looked me. Bipolar Disorder and my bladder (ureters). He never saw me as a whole person. No one has been able to find a cause for my kidney failure and as I would have my first consult with each new doctor they would end with “I don’t know what I could do for you”. To me this was unacceptable. The Nephrologist telling me I really only have one kidney and my choices were stents for the rest of my life or tubes coming out of my back. He thought it was good news.
The new Urologist was kind and compassionate. He explained in detail what the tubes coming out of my back would be like. They would hang down against the sides of my legs with little drainage bags at the end. I could never shower again and would have to do sponge baths only. The tubes are open to infection and get infected often. He told me he would try his hardest to make sure this wasn’t an option. He’s going to try a new kind of stent that the doctors I had been to previously didn’t have access to yet. He also said that there is a surgery similar to a kidney transplant but it involves your own kidney. He said this was a worse case scenario. He thinks that I will probably have to have stents the rest of my life. They aren’t so bad. The only downside to them is going under anesthesia every 3 to 4 months. It isn’t good to have that much anesthesia. The last 2 times my brain didn’t want to come out of the anesthesia. This is part of the Conversion Disorder. I can only hope it doesn’t happen again.
Right now I’m battling an infection and have to take 1,000 milligrams of an antibiotic for two weeks. I’m not feeling all that great. Plus my good computer is acting up and I have tried everything to fix it. The dog needs to be neutered ($180), I need an eye exam to get my contacts ($250), and I have a cavity. Oh! My car is acting weird too. I hate being stressed about money. I wish there was a way for me to do something to make money without interfering with Disability. I’m limited in what I can do. There isn’t much out there. I feel pretty good considering all of this. Mentally I have been doing better I just hope it lasts longer this time.