Agitated, Irritated, Complicated, Superfragercalalisticexpealidocious and Hair

I’m feeling agitated today. Just some little things. I don’t know if many of you know this about me but I have a child like voice.

When I could eat fast food and would go through the drive thru I had several people working the window say that I could “work in cartoons”.  Some people like my voice and some people don’t.

It has gotten a little deeper with age possibly because I’ve been intubated several times but I’m still a quiet person. It’s hard for me to yell. It has to do with muscles in my diaphragm being too weak. Sometimes a telemarketer would call the house, I would answer and they would ask me if my mommy or daddy were home! I would then tell them “No” they would ask who was home with me. I would say “No one”, at this point I could hear panic on their end so I would tell them how old I was. I thought it was funny, they didn’t.

Some people get the impression that you are weak or innocent in nature when you have a small voice. I hate being seen as weak. My voice isn’t going to get any deeper.

The appointment with The Urologist the other day was an example of where I felt someone was being condescending. Over complimenting my Burgundy Leather Moto Jacket and Boots until it was awkward was irritating to me. It was like he was saying “good for you” or “see you can do it all by yourself”. I wanted to tell him I was doing shots on the tour buses of rock stars when he was in diapers and not to talk down to me. Also I’m incredibly fashionable. Just not when I’m in the Emergency Room for KIDNEY FAILURE!!!

He isn’t the only one. People that I have met in the last few years learn of something in my past and are shocked. SORRY!! I had a life that included alcohol addiction, concerts, dive bars, sometimes meeting known people, and a lot of the time causing trouble. I do not do it now.

No, now I cringe at loud noises (mostly loud men), startle easily, forget where I am, only leave the house about 2 times a week, never meet new people in person, cry often for no reason, get bursts of weird euphoria then crash, want to do things but don’t because I’m tired from doing nothing. This is my hair and outfit for the Urologist.10398029_486044241577499_6901965662850127787_n That’s a feather sticking out, my hair stylist colored my hair to match the feather.

Reality Check

It’s been a tough few months. I have not been dealing with well. I also have not been honest with myself or seen things clearly. I’ve been irrational and impulsive. Depressed doesn’t even come close to how I feel. Dealing with my dad’s health issues, almost dying myself and not knowing why, losing my dog, my medications not working and physically not feeling well has taken a lot out of me.

I’ve been stubborn and delusional about getting 2 more dogs. I can barely take care of myself most of the time. I know I could probably do it but my dad would have to help. That isn’t fair to him. What my dad and sister don’t understand is my grief. I grieve longer and harder than anyone I know. There was already a giant hole in my chest that couldn’t be filled and aches constantly now it’s bigger.

When I tried to talk to my sister about it today I didn’t even get a complete sentence out. She automatically said “No more dogs!”. I could hear her husband in the background saying the same. They never liked our dogs because when they would visit once a year the dogs would get excited. The Pomeranian nipped my sister’s ankle and she was upset. There was no skin broken, no bruising, nothing. The dogs are used to it just being me and my dad. No one visits us. I made sure they were socialized as puppies and had them around people often. This got harder as my mother became sicker and I was taking care of her by myself. I spent a lot of time with them and so did my dad but I wasn’t taking them places anymore. They were happy though, they had their own little pack. One time my brother in law pushed my Papillon across the floor for begging at the table. I almost punched him in the face. I don’t discipline your kids you don’t discipline my animals.

The other day for the first time in years I wanted to go to the bar. It surprised me. I wanted to be numb. I also wanted to talk to people and not be alone. It scared me. If I drink I’ll die. It’s as simple as that. I won’t have 1 I’ll have 20. My kidneys will shut down or if I do manage to survive I’ll have no place to live. I’m also afraid of what kind of drunk I’ll be. The depression is so bad I don’t know if I would be happy or have the courage to hurt myself. I don’t want to find out. I do want to get better but nothing is working. It’s a circle of “we don’t know if this is causing this or the other way around”.

I’m becoming more and more afraid to leave the house. Then I get agitated and feel trapped. There is no relief. If the doctors don’t figure out something soon I’m going to Boston and letting them use me for a test subject or experiment for everything they’ve got. They can scan me from head to toe and I’ll be their guinea pig. It can’t be worse than this.

A Bad Place

I’ve been in a bad place for a long time now. If I’m honest more than 6 months. I’m kind of out of options at this point. I’ve tried all the meds available. With my kidneys now damaged and having to go for a biopsy I don’t think the doctor will risk putting me on anything new. I’m at the point where I would consider shock therapy again but again with everything else going on I don’t think they’ll do it. It isn’t just me who is suffering, my father hurts watching me everyday as I get worse. For some reason my crying is off the charts. My speech is getting worse and I don’t want to leave the house. I have no interest in anything I used to. No one can tell me if it’s because of my physical illness or not. I’m scared sometimes. I don’t have the energy to get dressed. I hope an answer is found soon.

No Positivity Here Today~ WALK

When I started this blog it was because I was tired of seeing other blogs filled with sunshine and rainbows. I don’t know what meds they were taking but they certainly weren’t in the same ballpark as mine. In the last 4 to 5 years, I really couldn’t give you an actual number because my memory is shot I have been on a merry go round of medications that would make your head spin. This last one is leaving me with a fight or flight feeling most of the day, I was only paralyzed one more time so far, and my skin is itchy. I want to run away, I want to get dressed up and go to the bar. I want to find everyone who was ever cruel to me and tell them off. I want off this drug.

So I am. I’m taking 10mg of expired Viibryd. My Dr. gets annoyed when a drug he’s pushing doesn’t work for me. I’m not telling him. Maybe an antidepressant wasn’t the way to go. I could feel myself leveling off right before starting the Brintellix. I mostly had the mood stabilizer and Adderall in me. People had noticed that I was talking, and looking better. Adderall doesn’t work on me like it does on other people. It controls my stutter, tremors, and for some reason I cry less. Just like coffee doesn’t make me hyper it calms me down and helps me focus. So I will experiment. I’m tired of being other people’s experiment, or test subject only to be made to feel guilty if it fails. I’m not it discussing with my sister.

When I told her about being paralyzed and having no one notice her response was typical ” Now you know how I felt when I was having my seizures”. To be clear, there was NEVER any evidence that she was having any seizures. She was monitored for 48 hours in the hospital hooked up to machines to record her brainwaves and it showed NOTHING. The doctors all said she was just under stress. Yes, stress can be bad and I’m sorry she was stressed. But it’s apples and oranges. And she knows it. It isn’t a competition to see who as it the worse. I wish she knew that.

I can’t change any of that. I can change what is going on now. I’m lonely with no social skills. I have no idea how to meet people without going to a bar and drinking. This I have to learn how to do. Alone. It scares me. I sit in the parking lot of a nice restaurant saying I’m going to go in sit by myself, have an appetizer and see what happens. What happens is I sit in the parking lot for an hour until I cry then I go home. lol  Baby steps. I also have to cut back on the negative music. Blasting Slipknot and Pantera from my speakers while driving just makes me more aggressive. As brilliant as Corey Taylor is I’m going to get in trouble some day. So hopefully I’ll figure some things out soon.