Category Archives: Encouragement

If I Could I Would

If I could I would find all of the truly wonderful, compassionate people that take the time to either read my blog, comment, respond to comments, and never ever make me feel like an outsider and personally look them in the eye and thank them.

Some of you understand what the loneliness and pain is like. I have been experiencing it more than usual lately and probably have gone on about things a little too much. I know this is true because my father was gone most of the day and when he came home he walked out on 2 conversations with me. I pretended he didn’t and answered his side of the conversation for him. Then he got mad because I was acting “crazy”. I told him it was the only way I could talk these days because no one wants to talk to me. He left again.

I’ve tried to reach my sister for several days now. I need to color my hair and she has my bowls and brushes at her house from the last time I did hers. She finally texts me today to ask if I want to have a “color” party this week because she has to do her hair too. What this really means is me coloring her hair. The last time I did her hair it was really a “color correction” and it would have cost her about $200 or more at a salon. I also cut it. I paid for all the supplies. She did text me a few days later to say thanks. But when I really need her I get nothing. I’m trying to come to terms with all of this but it’s hard.

My father still can’t comprehend that my hospital stay was serious. I tried to explain it to him by showing him the bill where it said “life saving measures were taken”. You think he would have got it when I told him they asked me if I wanted to see a priest and if I wanted to sign a “Do Not Resuscitate” form. Instead he made it into a game of who has it worse. I get more sympathy from strangers.

I’m kind of scared. There is pain in my pelvis where the stents are, I bruise easily, I’m having extreme headaches and my vision is going in and out. Try peeing when it feels like your peeing nails and not much is coming out anyway. There is pain in my back and sides also. I have lost more weight. I have a muscle wasting disorder to begin with and now it’s worse. My family doesn’t want to hear it. A small part of me hopes this new doctor finds something worth all of this so I can say a big F you to my family. I’ve already been told there is something wrong they just don’t know what. It’s petty I know. I just want to scream at them and can’t.

So anyway again thanks to all of you. There are days I feel like I might not make it. Then I read someone else’s story or a comment and I don’t feel as alone. I’m reminded that I can and will continue on to another day.

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