Tag Archives: Physicians

I AM LOST

A Urologist is a doctor who specializes in the diagnosis and treatment of diseases of the kidneys and urinary system in men and women. They also perform surgery and treat tumors, cysts, and stones.

A Nephrologist is a doctor who specializes in the diagnosis and treatment of diseases of the kidney such as inflammation of the kidney, Chronic Kidney Disease, high blood pressure, and Diabetes. They prepare patients for the reality of dialysis and kidney transplant. They do not do surgery.

Patients with early Chronic Kidney Disease need to be evaluated on a regular basis to prevent complications from nephro toxic drugs, dehydration and low Vitamin D. Many prescription medications need to be adjusted with CKD because they build up in the body’s system.

Common eye problems for people with kidney disease include dry, red, sore eyes that feel gritty. This happens because of impaired blinking and tear formation causing dry eyes. Extra calcium and phosphate can also settle in the eyes causing irritation. Kidney disease can also cause pressure behind the eye making vision blurry. Low blood glucose also causes blurred vision and confusion.

My Glucose levels have been consistently low. My last 3 results from 3/16 to 3/17 were 64, 68, and 67. These were done without fasting so I had breakfast which included sugar, cinnamon, and chocolate and coffee with sugar and Mocha Almond Fudge creamer.

When I’ve gone to Nephrologists they tell me I need a Urologist. Urologists can’t answer my questions and tell me I need a Nephrologist or another specialist.

I asked if changing my stents would help with my fatigue and vision. The Urologist said my stents shouldn’t be the reason I’m tired and have blurred vision. I’m in Stage 3b of Chronic Kidney Disease which CAUSES CONFUSION, FATIGUE, AND CHANGES IN VISION.

No one knows why I have kidney disease and they are not lining up to find out. I can’t get a Primary Care Doctor because I have too many health problems with “unknown” origins. This makes me a “difficult patient” so they refuse to take me. Then the specialists I have complain because I don’t have a Primary Care.

SICK OF IT!

BRAINSTORM

I’ve been thinking about my niece a lot. I want to drive cross country. I’m thinking I should take her with me. I’ve been sober 10 years, I have experience with heroin addicts, I know more than anyone should about mental health, I’ve been where she is, she would be locked in a fast moving vehicle with me, she would have to be responsible for some of the driving, it would give her something to focus on and get her away from a toxic environment, I could leave her in the desert if she gives me trouble (joking kind of), I really feel in my gut this would be good.

No one else in family will think it’s a good idea. I can already imagine all the negative comments. She’s 20, I’m 45, I believe I can honestly help someone I love. I haven’t been allowed to do so for some reason. I don’t know if her mother doesn’t trust me or if it’s something else but it’s better than letting her live on the streets.

I don’t know how you could refuse to let me try to help but kick her out and let her be homeless. Another week where all I did was cry. I heard nothing more about the situation until she overdosed and it made the news. I’m sad and a little angry.

If it is a bad idea let me know. Maybe I’m delusional or grasping at straw.

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Misdiagnosis And Medications

I’ve taken a break from everything lately. I’ve been dealing with someone pretending to be “Steven Tyler” who somehow got my cell phone number and was using Google Hangouts to repeatedly send me messages. I didn’t even know what Google Hangouts was. Then he started texting my actual phone after I blocked him on the Google App. It took weeks to get it to stop. I still don’t understand what the end game was. He wasn’t asking for money or anything like that it was just creepy. I have to say it triggered a lot for me. Unfortunately this wasn’t the first time. Anytime an actual verified celebrity has liked a comment I’ve made or followed me this has happened. So I will try not to make any intelligent comments that musicians find interesting. Thank you very much stalkers.

MISDIAGNOSIS

I’ve had my fair share of doctors who have misdiagnosed an illness I have. I also had many doctors miss a diagnosis of Bipolar Disorder for 20 years. What makes me angry is my Dad. A few years ago he was having severe headaches and went to the ER. The doctor did an X-ray of his head and told him he had Temporal Arteritis. He was put on a high dose of Prednisone for a year. It was hard to get him off it. He became a different person. He was aggressive, moody, confused, unsteady on his feet, and looked bloated. It was the aggression I had a hard time with.

The only way to diagnose Temporal Arteritis is to have a biopsy, you can not tell by looking at an X-ray. My Dad refuses to believe anything I tell him. When his headaches started again recently he called his GP and asked him for Prednisone. The GP gave it to him. I’ve been staying in my room ever since.

His blood pressure has been dangerously high after dialysis. 208/140 high. They can’t stop his bleeding when they take out the needles. This is all from the Prednisone. Which by the way actually says to tell your Doctor if you have: Kidney Disease, Heart Disease, High Blood Pressure, Cataracts, Stomach Ulcers, a History of Stomach Bleeding, or Depression.

He has all of these! He has mesh in his stomach for an Aortic Aneurysm that’s already been repaired once!

Are these people stupid? I know the Hippocratic Oath isn’t legally binding but do they care if they kill someone?

The other day the dialysis center wouldn’t give him his treatment. They said his fistula was clogged. A Doctor came over and asked what was wrong. He looked down and noticed there was knot in the tube. He fixed it and went about his business. They were going to send my Dad for surgery he didn’t need because there was a kink in the tube that no one noticed!! And the Head Doctor acted like it was no big deal.

I read a study today that said a patient has 42% higher chance of a misdiagnosis if the Doctor thinks they’re “difficult” or “needy”.

They suggested patients be more positive when meeting with Doctors for the first time so this doesn’t happen.

Hey, sorry if I ask questions or cry because I’ve already been to 5 other Doctors who couldn’t/wouldn’t help me but let me make this more comfortable for you while I’m literally dying.

Here’s and idea, DO YOUR JOB! No one forced you to go to medical school you chose to go. If you chose to go only for the money than you should quit now because times have changed.

One more thing. No Doctor should be prescribing medications or making a diagnosis they are not qualified to make. Dr, Drew isn’t a Psychiatrist so he shouldn’t be making psychiatric diagnoses. A General Practitioner can’t diagnose Conversion Disorder. You need a Team to do that. A Psychiatrist, a Neurologist, and a doctor who specializes in Movement Disorders.

Your Psychiatrist should also have a degree in Psychopharmacology so they know how medications work, which ones work for different disorders and which only make them worse.

Advocate for yourself because no one else will.hippocratic


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