Tag Archives: Mental Health

It’s Been Awhile So Get Ready!

After not really writing for awhile, I started to notice I was becoming more irritable, irrational, quick to anger, isolated and depressed.

I’ve always had a problem with confrontation. I avoid it as much as I can. This has usually meant staying silent when someone hurts me or says/does something I disagree with.

Eventually I will reach a point where I can’t swallow anymore B.S. and I reach a breaking point. Whoever is near me at this time suffers the consequences.

I can physically feel it happening. I hear my blood rushing in my ears, I lose my vision except for the color red or red dots and my head gets incredibly hot.

When it’s over, I don’t remember all of it, only bits and pieces. I know I screamed and yelled, said some horrible things, but I don’t remember the specifics.

I don’t make excuses for myself. I have tried to explain why it happens.

One of the most difficult things is when your loved ones think you aren’t trying hard enough.

When I had my last kidney surgery to change my stents, it was embedded and partially blocked with a build up of mineral and calcium deposits.

Your kidneys filter toxins from your blood and help keep your bodies chemistry in balance.

If you have 1 kidney working at 40% that has been compromised because the stent keeping it working at 40% has become embedded and blocked, your blood isn’t being filtered and your body chemistry is thrown off.

Now imagine you have an illness involving a chemical imbalance in your brain. Plus most of the medications you take go through your kidneys.

This would cause a huge problem if this went on for 6 months without you or your doctor knowing.

So when my stents were finally changed it was like starting over. I felt like I was mentally back where I was at 20 years old. My Psychiatrist didn’t adjust my medications even though he received all the reports. I was basically starting fresh but at high doses. All the medications that had been in my system I had detoxed from. One of the reasons I felt the way I did.

Starting over with all the side effects is horrendous. There have been times I just wanted to get in my car and start driving until I ran out of gas.

My Dad isn’t doing well and I’ve had to worry and take care of him. He has multiple disc herniations and bulges in his back. There’s also a compression at L4 and extreme spinal stenosis and arthritis. When I heard them ask if he knew he had several healed fractions I thought I was going to vomit.

He was too busy bragging about how many pounds of grain he can lift and carry to feed his 300 birds! He told me he got rid of almost all of them. He lied. Then continued to dig the hole deeper by boasting of all the other things he isn’t supposed to be doing.

I can’t chain him to his chair. He turned 75 on June 5th. I called and reminded my sister the night before. She NEVER CALLED HIM. On the 7th I called her and asked if she had called our Dad. She said she was going to. I asked why she didn’t do it on his actual birthday. She replied “He didn’t call me on my Birthday” That’s when the blood started rushing. In the last month she has told me 3 different times that she or her and her husband dislike my behavior and how I don’t take responsibility for anything.

I never see my sister and her husband. Since I had that 1 fight with him 4 or 5 years ago I’ve been kept at a distance. But they still bring up my “behavior”. How do you know what my behavior is when you’re never around me?

Sorry if I’m mad because once again I’m the one taking care of one of our parents and I’ll be the one that gets to watch them get worse and worse. I’ll be the one to either find him dead or watch him die at the hospital while you make excuses from 10 minutes away.

She never called for Father’s Day either.

I can’t watch another parent die.

Watching my mother almost killed me. I can still see her face, the nurses laughing, my Dad howling, the blood, like it’s right in front of me.

I remember her last words to me and that kills me.

I don’t want to do it again. But he never left me. I owe him. I know the rest of my family figures it’s okay because I’m alone and they think I’ll stay that way. Maybe they’re right and I should accept it.

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FINDING MYSELF

I’m not a religious person. I believe in what I can see and feel. This makes it hard for me to find any real spirituality that fits in with what I believe.

I’ve researched Buddhism, which is okay but I would have to fake a lot of the positive thinking they have going on. I’m not sure my body can do Yoga right now either. Most of their concepts are hard for me to wrap my brain around.

I’ve researched Hinduism which is similar to Buddhism but not.

Paganism which can get a little dicey. My Celtic/Norse heritage which can also be a tough one. Shamanism sounded good so did Wicca but I have too many questions and I’ve never been someone who could “just believe” in anything.

I tend to lean toward the darker side of things. I know it’s unhealthy.

I do believe in animals and love to watch them and their behaviors. My favorite has always been the Wolf.

I also think there is something to the metaphysical properties in gemstones. I can’t dispute the research that’s been done the last 50 years or what’s been found that’s the same across many cultures and beliefs. Amber is has the same meaning and properties to Native Americans as it does to Buddhists. I enjoy working with real gemstones. I’m not talking diamonds. I’m talking amethyst, black onyx, agates, the less expensive ones.

I’m still lost and have no idea what I’m doing. I need purpose. I’m also tired of modern medicine telling me they can’t help me anymore.

My GFR is at 40 and my recent surgery didn’t go well when they changed they my ureteral stents. One became embedded which caused more scar tissue which I can’t afford to have. This means having my stents changed more frequently under anesthesia and having a breathing tube. Of course they couldn’t wake me for 2 hours after the surgery because my twin drove me to the hospital and decided to tell me exactly what she thought of me before I went under the anesthesia. When you have Conversion Disorder that can’t happen. The anesthesiologist was not happy with my sister. He had seen her talking to me before the surgery and he had seen me crying.

It’s been a difficult couple of months. I’m more tired than usual, my neck and hips are killing me and my social anxiety has been at an all time high. I’m used to physical pain so my neck and hips have to be bad for me to complain. I kept working while I had 2 herniated discs in my back with 2 bulging discs above and below each one. The only thing that finally stopped me was when I got stuck on the pavement getting out of my car. They thought I wasn’t showing up until I finally reached my cell phone and told them I was outside on the ground. lol

My Dad is having sciatic nerve pain right now and is the biggest baby I’ve ever seen. He won’t listen to a thing I say even though I’ve been through it all. I had 3 Epidurals, water therapy, a 2 hour IV drip of some cocktail to release the muscle spasms because I was shaped like the letter L and they refused to do surgery because it would cause a domino effect. But he listens to one of his friends who says he was kidnapped by aliens! It’s frustrating.

Other than all of this everything is okay.group-wolves-called_9ee7f18bde1c5374


TAKING RESPONSIBILITY AND TOXIC PEOPLE

I had surgery to replace my Ureteral Stents on May 14th. My twin sister drove me because my Dad has dialysis on Mondays. As soon as she got in the car I felt the tension. I was already feeling anxious and wasn’t allowed to take any of my Bipolar medications before the surgery. I don’t remember what started it. I think I started crying and it annoyed her. We also got lost on the way to the Hospital and she refused to listen to me. She wanted to drop me off at the door. I told her she had to come in and talk to them so they knew I actually had a ride home.

She wanted to valet park my car and I didn’t understand why when you could park yourself for free. She wasn’t paying for it. I always feel weird about valet parking. It’s a Hospital, you don’t need to valet park. This annoyed her further.

She didn’t want to come back with me while I waited for them to take me into surgery. One of the nurses must have said something to her because she eventually came back to sit with me. It was a mistake.

She was showing me pictures of my nephews. I love them more than anything. I didn’t know the older one spoke in front of the Mayor and 300 people on behalf of the Little League. They looked so grown up. Of course I started to tear up.

My sister said “You know you can come over any time and see them”. I looked at her with my mouth open. I then said “I have to wait for your husband to leave the house first?”. She didn’t answer right away. Then she said “Neither one of us like your behavior or how you don’t take responsibility for anything you say or do”. That was the beginning of the end.

The anesthesiologist came into the room to talk to me while my sister was there. He came back after she left. He asked if I was okay. I told him I was fine. He said he was asking because I have a history of not wanting to come out of the anesthesia.

Nothing went well. They blew a vein in my IV, one of the stents became embedded and encrusted, someone taped my top lip to the breathing tube and didn’t realize it until they pulled it out taking the skin of my lip with it, and they couldn’t wake me.

After 3 hours I woke up. The anesthesiologist came in again. He said that he knew I was upset before going under and that it can’t happen again. He said at some point I’ll stay under because of my Conversion Disorder diagnosis. When I’m stressed, anxious, or sad I don’t always have control of neurological functions. It’s scary.

All of this made me realize the people around me are not going to change. I have to change how I react, my environment, and how I cope. I also need to recognize toxic people and situations.

TO BE CONTINUED…..be5d9e9599909984881e21c7036e306e


TO MY MOM

It’s been 10 years since you passed away. It hasn’t gotten any easier. I still can’t bring myself to visit your grave. The rest of the family make comments about this. I don’t care.

You would be disappointed with us. I know you would. The petty fighting and grudges we hold against each other. Some things can’t be forgiven. You could always forgive and that’s why we loved you.

The one thing I had a problem with was your enabling everyone around you. I know it came from love but you never realized when someone wasn’t being truthful or sincere. Maybe I had been around too many liars, cons, addicts, and thieves so I spotted it easily. It would take years after your death for people to believe me.

There’s nothing worse than your family thinking your “too dramatic” or “making stuff up” all the time. One thing I don’t do when I’m sober is lie. Actually when I drank I was too truthful and that got me into trouble too.

When I first saw you in that hospital room I felt like I wasn’t in my own body. I was outside of it watching as it all happened. I didn’t feel anything for a long time. I somehow knew if I did it would end me. It almost did anyway.

Months later I found myself in the bathroom at work screaming into a bunch of paper towels. I couldn’t move or stop crying. All I could see was your face, eyes open and blank, bloody foam that wouldn’t stop bubbling from your mouth. All I heard were nurses laughing and Dad wailing like a wounded animal. I didn’t want to remember any of it.

Your oldest granddaughter decided to dedicate many tattoos to you and acts as if she was the only one who lost you. Her mother visits your grave often. Your granddaughter also decided to write me and say some of the most hurtful things I’ve ever had said to me.

She has replaced J as number 1 on my shit list. I’d rather be punched in the face than have someone say what the things she said. But she’s found God so I guess she thinks it’s okay to make someone feel like dirt. It’s okay to tell them they should’ve killed themselves because they are waste of space and their own mother didn’t love them as much as she loved other people. It was 3 pages of this crap.

I hope you don’t know what’s going Mom because you would be as hurt and angry as I am. Dad finally told me what you really thought today and you weren’t fooled after all.

You are MY MOM I took care of you and loved you. I think about you always and miss you often. I’m letting go of the toxic people. I don’t have the time to help people who don’t want to be helped. From now on I’m helping myself and Dad from time to time. I love you.11059761_10207494279902008_1407885758767048615_n


THERE’S A DIFFERENT GENERATION OF ADDICTS NOW THAT ARE HARDER TO REACH

I had the name of the street the apartment was on when the paramedics revived you. I drove up and down it for hours, holding my breath, hoping to see your face. I didn’t.

It scared me to read your posts on Facebook. I knew you were in trouble. I knew because we think the same.

The problem is this new generation of addicts with mental health issues think they’re the first ones to ever have these thoughts or do what they do. They’ve been raised to think everything they do is special and unique. I’m sorry but it isn’t. This is the problem.

Your parents think a week in detox makes you okay. You get out, they give you a big hug and send you on your way. They attend nightly meetings on how to “cope with their addicted child” while you’re back on the street again repeating everything you did the week before.

The mental health part is usually ignored or only touched on briefly because no one wants a child with a mental illness. A child that’s an addict is better. The shame of your child having both would be too much.

The parents created the problem. At least the parents I’m referring to did.

I offer my help multiple times over the years only to be told “No, she’s fine. Focus on yourself.”

This was my last time reaching out. My heart can’t handle watching a beautiful young girl slowly die any longer. I’m tired of biting my tongue and taking abuse from other family members for trying to help. So I’m done. I’m letting go.

I can’t spend what time I have left worrying about people who don’t want or need my help or even want me in their lives.

I laughed for the first time in a long time the other day. I talked to my best friend. The only one who ever really understood me. I had to tell her about my health and I wanted her opinion on making my twin sister my medical proxy. She agreed that I shouldn’t. If I can’t trust my sister because of the way she threatens me or uses my illness against me than I shouldn’t be giving her any control over any areas of my life.

I have the hardest time letting go. I have to get past it if I want to follow through with my road trip to Texas after my surgery. There’s just one thing I left to do and W agrees I should go for it. Granted W is a little out there like me which is why I love her. But she has always accepted me for who I am no matter what. d94bebff677aa86360da53bcc7ab03eb--addiction-quotes-addiction-recovery


I AM LOST

A Urologist is a doctor who specializes in the diagnosis and treatment of diseases of the kidneys and urinary system in men and women. They also perform surgery and treat tumors, cysts, and stones.

A Nephrologist is a doctor who specializes in the diagnosis and treatment of diseases of the kidney such as inflammation of the kidney, Chronic Kidney Disease, high blood pressure, and Diabetes. They prepare patients for the reality of dialysis and kidney transplant. They do not do surgery.

Patients with early Chronic Kidney Disease need to be evaluated on a regular basis to prevent complications from nephro toxic drugs, dehydration and low Vitamin D. Many prescription medications need to be adjusted with CKD because they build up in the body’s system.

Common eye problems for people with kidney disease include dry, red, sore eyes that feel gritty. This happens because of impaired blinking and tear formation causing dry eyes. Extra calcium and phosphate can also settle in the eyes causing irritation. Kidney disease can also cause pressure behind the eye making vision blurry. Low blood glucose also causes blurred vision and confusion.

My Glucose levels have been consistently low. My last 3 results from 3/16 to 3/17 were 64, 68, and 67. These were done without fasting so I had breakfast which included sugar, cinnamon, and chocolate and coffee with sugar and Mocha Almond Fudge creamer.

When I’ve gone to Nephrologists they tell me I need a Urologist. Urologists can’t answer my questions and tell me I need a Nephrologist or another specialist.

I asked if changing my stents would help with my fatigue and vision. The Urologist said my stents shouldn’t be the reason I’m tired and have blurred vision. I’m in Stage 3b of Chronic Kidney Disease which CAUSES CONFUSION, FATIGUE, AND CHANGES IN VISION.

No one knows why I have kidney disease and they are not lining up to find out. I can’t get a Primary Care Doctor because I have too many health problems with “unknown” origins. This makes me a “difficult patient” so they refuse to take me. Then the specialists I have complain because I don’t have a Primary Care.

SICK OF IT!

BRAINSTORM

I’ve been thinking about my niece a lot. I want to drive cross country. I’m thinking I should take her with me. I’ve been sober 10 years, I have experience with heroin addicts, I know more than anyone should about mental health, I’ve been where she is, she would be locked in a fast moving vehicle with me, she would have to be responsible for some of the driving, it would give her something to focus on and get her away from a toxic environment, I could leave her in the desert if she gives me trouble (joking kind of), I really feel in my gut this would be good.

No one else in family will think it’s a good idea. I can already imagine all the negative comments. She’s 20, I’m 45, I believe I can honestly help someone I love. I haven’t been allowed to do so for some reason. I don’t know if her mother doesn’t trust me or if it’s something else but it’s better than letting her live on the streets.

I don’t know how you could refuse to let me try to help but kick her out and let her be homeless. Another week where all I did was cry. I heard nothing more about the situation until she overdosed and it made the news. I’m sad and a little angry.

If it is a bad idea let me know. Maybe I’m delusional or grasping at straw.


HAVING AN EXPIRATION DATE

I’ve been past my “suicide” phase for years now. I still think about it on really bad days but not like I used to when I self-medicated with alcohol. When I self-medicated with alcohol I didn’t just think about it. I’ve been sober close to 10 years now.

Seeing the results of my blood work I was scared. I didn’t know my kidneys were getting worse so fast. They use your GFR to determine when you should go on dialysis or go on the list for a kidney transplant. When the number hits 30 your Doctor starts preparing you for your options.

My GFR was a 40 one year ago. I kept putting off going in for surgery to have my ureteral stents changed. Part of the reason was the Depressive Episode I was in for a very long time. The other part was just fear. You know when something is wrong with your body. I knew I was losing weight again but there was some swelling in my feet and ankles. The color of skin is the same as chalk but with dark circles under my eyes. I’ve lost muscle mass specifically in my temples. I didn’t notice how bad until this morning. They are so hollowed out I could collect rain in them. I’ve been a little short of breath and having trouble doing simple tasks.

I’m pretty sure I won’t make it on a transplant list. I checked again today. If you have a mental illness, a past history of drug/alcohol abuse, or an autoimmune disease, you usually have a hard time getting on the list. I have all three. I have twin who could donate her kidney but before I could ask I was told she wouldn’t. She had to think of her children. Pretty sure her husband had a big influence on this decision.

Because no one knows why I went into Kidney Failure, or why my kidneys are getting worse, no one is sure about dialysis. My other option is to have a tube coming out of each side of my back just under my shoulder blades. The tube would drain fluids out of my system and goes down each leg. Someone has to learn how to clean and change the drains which I don’t have anyone to do this.

Before I make any big decisions I’ll go to my appointment on Tuesday and see how much longer I can keep the stents. If they don’t send me to the ER then I’m going on a Road Trip to Deep Ellum, Texas. I don’t care what anyone says. I have limited time to do what I wanted to do. So I’m going to try it. What’s the worse that could happen? lol


SHOW ME HOW TO LIVE

I admit I’m afraid. I also admit it’s my own fault. I kept putting it off. I even might of done it on purpose.

The Doctor that changes my ureteral stents wanted to see if I could go a year this time but if I had any problems I should come in sooner. I started having problems around the 6th month. I didn’t call or make an appointment. I ignored the pain, the dizziness, loss of appetite, some swelling in my hands and feet, headaches, change in vision, etc. My Bipolar medications were not working correctly either. I’ve been more than depressed for some time now.

I went online to see exactly when I last had my stents changed. I could also see lab results and notes from surgery while I was there. I wasn’t happy.

When I first went to this Doctor he had to exchange the stents put in by a Doctor that didn’t like me very much. Normally I would think I was being dramatic but I brought my sister with me to 2 of my appointments.

My twin is odd in her own way. She can ignore me and say horrible things but if anyone else does it they better run. She’s gotten physical with a few people on my behalf. Nothing major, she grabbed someone by their lab coat and pushed another person out of the way who wouldn’t let us leave the Hospital.

So when she witnessed how this previous Doctor treated me in his office she wasn’t happy. I wasn’t either. He insulted me in front of the entire team about to operate on me and then told them I was “a difficult patient” and they should be happy I didn’t “bring my guard dog” referring to my sister.

When the Doctor I have now went to change the stents he found the guidewires had advanced up both ureters to both kidneys. On the left side the had crossed over one another. This caused scarring in the ureters.

I also didn’t know my GFR has been declining or that it’s as low as it is. I was told it was 67.

The last three results have been 48, 45, and 40. When it get’s to 30 you’re supposed to start discussing dialysis or transplant.

As far as a kidney transplant goes I highly doubt I would get one. My Dad is on dialysis already and my twin sister has already said no.

If you have a mental illness, have to take specific medications, have a history of alcoholism or drug addiction, have an autoimmune disease, you most likely won’t be considered. I can check all of these boxes.

I have things on a Bucket List left to do. I want to have serious conversation with Dave Navarro. We have a lot in common. There are places I want to see. I would like to see Steven Tyler in concert one more time. I want to spend a day with a pack of wolves. There are so many places I wish I could travel to. Places filled with art, music, food, lights, people, where I can walk around and just take it all in.

 


IF NOTHING CHANGES

Sitting here day after day with little human interaction is becoming both difficult and easier to do. When I do get the chance to talk to someone I actually get a sore throat if it’s for longer than 10 minutes. Luckily for me it rarely is.

I want to change my situation but I’m scared to death to do so. I also feel guilty about leaving my Dad.

I try to remember that he has already lived a full life. He’s travelled all over, done some pretty exciting things, found and married his soulmate, had two children with her, lived, laughed, and loved her for over 45 years. He has 5 grandchildren that love him but he doesn’t see them because he feels guilty that my mom isn’t here to be with them. I find this ridiculous. I also think it’s more about his hearing than anything. He can’t understand what they’re saying so he doesn’t interact with them.

His hearing has become a huge problem. He refuses to do anything about it. He used to love to watch movies with me. He stopped a few years ago because he couldn’t hear the dialogue no matter how loud it was. He has a habit of just agreeing to what a person is saying when he has no idea what was said. This isn’t good when it comes to his dialysis and health. I finally called the dialysis center and told them he can’t hear what they’re saying and is just agreeing with them. They had no idea after the years he’s been there.

I also told them that he isn’t following a renal diet at all and if he says he is he’s lying. I gave them the correct dosage of Prednisone he’s taking because he told them 10mg when it’s 40mg. They need to know these things!! He get’s pissed off and leaves early because his TV isn’t working. It isn’t about the TV, it’s about him feeling anxious so bad he HAS to leave. I told them this also.

I did this because for the last week he’s come home with feet and ankles so swollen they look like wax. They don’t look real. That’s how mine were when I went to the ER. Would he listen? No. Would my sister answer her phone? No.

I’m afraid if I change my environment things will stay the same. I’ll start to talk to someone and they will fall asleep while I’m talking or walk away. Both my dad and my sister fall asleep while talking to me. My dad walks away often.

Maybe I should record my voice reading a book and sell it as a natural sleep aid.

There are no words to describe how it feels when you’re ignored, dismissed, or on the opposite end yelled at for things beyond your control or still held accountable for mistakes you made 20 years ago.

Sometimes I don’t know what I want. I’ve seen the worst of humanity, I’ve been on the receiving end of  humanities worst, but for some reason I still crave human interaction. I still have hope. I just don’t know how much longer that little bit of hope will last.1c69ece744ce08e16a8cfc698acf0e23


WHAT MAKES YOU AN EXPERT ON MENTAL HEALTH AND ADDICTION? *Sensitive Subject Matter

I am my father’s daughter. Like my father, when I find a subject I relate to or a hobby I enjoy, I learn everything I can about it. I don’t mean this in a normal way. My father never made it past the 8th grade but taught himself everything one needed to know about most animals specifically birds.

He taught himself how to breed Exotic Birds on The Endangered Species List and obtained a Federal Permit to do so. He was 1 of 11 people in the United States to successfully breed one species. He knew about diseases, diet, flight patterns, temperatures, everything.

I was born into a family filled with addicts and people with mental illness. I spent a lot time around all of them. Both my parents come from big families but mom’s side was a very close bunch and also very dysfunctional. My mom was the oldest and did her best to help her brothers and sisters no matter what. My sister and I always went with her even if that meant visits to the State Mental Hospital or a Group Home.

My sister and I always talked about one of us becoming “crazy” like it would be the worst thing in the world. It kind of was. I already knew it was me, my parents already knew it was me. The only one who didn’t see it was my twin sister. It would take her 20 years to admit I was sick.

I know all the ins and outs of being hospitalized against your will. I know what happens when you swallow a bottle of prescription sleeping pills after drinking a case of beer and a pint of Fire Water. If someone gets you to the Hospital early enough you get charcoal, which I did the first time. If you get there a little later they pump your stomach, which they did the 2nd time. If you fight them they also restrain you.

I know if you cut your wrists a certain way you can do permanent nerve damage. Which I did on one occasion so my pinkie is numb most of the time.

I know after so many visits to the ER for attempted suicides they can keep you and they did. No one came to talk to me or give me any tests, I sat and watched TV with all the other people who were either detoxing or had mental health issues.

I know after about 4 or 5 visits to the ER for attempted suicide a judge can court order you to undergo therapy and see a psychiatrist. I was court ordered several times but no one ever diagnosed me or asked many questions they just handed me a bucket of pills. This is common for State run facilities.

Every single time I tried to take my life I was drunk. I never tried sober. I thought about it sober but never acted on it.

People say “Why didn’t you ask for help?” I say “Because I was drunk, confused, couldn’t get out of my own head, all I could think was what a waste of space I am, how no one loved me, how could anyone love me?” When did I have time to stop and think “Gee I should probably call my sister who is sick of hearing me cry all the time”.

It doesn’t work that way. When you’re in the middle of a tornado you can’t think rationally and that’s the point.

I don’t know why people expect this.

We need to reach people before they get to the tornado.

It’s the only way this will work. If you know someone with a mental illness call them, invite them for coffee, tell them you love them, give them purpose, stop them before the snowball starts going downhill picking up those negative thoughts growing larger and larger.

I want to know I matter. I want to know I’m still loved even though I’ve f*cked up so many times. I want someone to hug me and tell me it’s ok even if it isn’t.

This is why I am more qualified to speak about mental health and addiction than any Doctor or Talk Show Host because I live it and I’m still here.quotes-about-strength-robin-williams-depression-quote-all-it-takes-is-a-beautiful-fake-smile-to-hide


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