Tag Archives: Frustration

I AM UNIQUE, QUIRKY, LOYAL, SENSITIVE AND MENTALLY ILL

I know if I don’t take some type of medication I will at some point find another way to ease my anxiety, pain, racing thoughts, fatigue, delusional thinking, compulsive behavior, and suicidal thoughts. The last one won’t be a thought anymore if I start drinking again.

I’m only getting the benefit of a small amount of my medications and I know this. Even when I was getting the full benefit I still wasn’t close to “normal”. Chances are I never will be.

I get frustrated at people who advocate for Breathing Therapy and Exercise as a cure/tool for depression but it WILL NOT WORK FOR ME.

I get pissed when I listen to Dr. Drew try to talk about a subject he obviously knows nothing about, treating mental illness with addiction. Everything he said to me was wrong. Most research and scientists have found that the undiagnosed underlying mental illness causes a person to seek relief from alcohol and drugs. The majority of mental health professionals do not know how to treat both and the person gets bounced back and forth or isn’t treated at all.

Then I read a blogger who doesn’t believe in Treatment Resistant Bipolar Disorder. I read the Blog expecting to see evidence, statistics, quotes from researchers, but it’s just their opinion. That’s fine everyone is allowed to have an opinion. The problem is when you have thousands of followers and your a supposed Bipolar Guru.

I also don’t appreciate someone repeatedly trying to tell me I’m wrong and why when I’ve already conceded. I dislike confrontation of any kind so I’ll eventually tell you what you want to hear to avoid conflict that will trigger stuttering and tremors. It isn’t worth it. I don’t know you and I have enough problems with my own family thinking I don’t try hard enough to get better and that I’m just lazy.

I think I’ll have my medical file tattooed on me to make it easier. When I mentioned “Life saving measures were taken” when I went into Kidney Failure both my Dad and twin sister didn’t believe me. Do they think you lose 100% of one kidney and 39% of the other because you have a cold? Or I had to stay in the hospital for over a week because they liked my company? I’m tired of having to prove that I’m sick it’s ridiculous.

They think because I lied when I was drinking that I’m a liar. That’s fair and I don’t blame them up to a point. I’m over 9 years sober and they now know why I was drinking and what I went through when I drank. I have not lied since I’ve been sober (except if someone asks me if they look like they’ve gained weight you can’t win with that one)

I’m not a bad person, I’m a little odd at times. My sense of humor is strange and I find things fascinating that most people don’t. I love to research a topic but I become obsessed sometimes if I can’t figure something out. Sometimes I’m quick to anger but I’m also the first to admit I’m wrong and I’ll feel guilty and cry for days until I make things right.

If I love you you’re lucky because you’ll get the shirt off my back and I’ll take a bullet for you (just ask W. about that one) my mom was the same way she protected those she loved.

That’s it for today. I’ve been binge eating for some weird reason. Not really weird it’s because CVS changed the Generic version of one of my medications. Instead of drinking I’m eating Gluten Free Frozen Yogurt, Gluten Free Cupcakes, Boar’s Head Dill Pickle Spears (I drink the juice too for my gallbladder), Rice Chex w/ Cinnamon & Sugar, Jax Cheese Puffs, I think there was more but I can’t remember lol

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WHEN YOUR OWN DOCTOR IS FRUSTRATED WITH YOU WHAT DO YOU DO?

The last time I went to my Psychiatrist in February, he was visibly frustrated with me. It was obvious he was out of options. He threw names of medications at me that “we” could try. The problem is that they were all chemically related to previous medications I’ve tried.

I couldn’t understand how he thought Trintellix would be that much different than Brintellix. There is a difference, there’s a T instead of a B. How is it that I know the components of these medications and he doesn’t? How is it that he still can’t tell me how Viibryd is broken down in the bodies system and if I’m getting the full benefit of it? Is having 1 kidney and an extremely compromised immune system preventing the antidepressant from reaching my brain? How is it that no one knows? This isn’t curing Cancer or figuring out the molecular structure of a foreign matter we recovered from another planet! (If you believe in such things)

Sorry. So, towards the end of our 12 minutes he suggests that if I’m that miserable “Why don’t I try taking myself off my medication to see what happens”. This kind of pisses me off as everything does these days.

I reached a point a few weeks ago where I didn’t care anymore and started to wean myself off of my meds. I then tried to change Primary Care Doctors. That didn’t go well at all.

People who don’t know me and read on a piece of paper my diagnoses tend to assume that I am less than intelligent. This is a poor mistake on their part. If from the beginning you talk to me like I am a child or I can’t hear you than we are going to have a problem. If you don’t listen to what I have to say and dismiss me we are going to have a bigger problem.

Conversion Disorder and Bipolar Disorder can work in mysterious ways. There are times where I will be so frightened I will curl up in the fetal position rocking my body back and forth while crying uncontrollably for hours. Time stops during these episodes. Then there are times where a red veil of rage clouds my eyes. I spew out whatever is in my head and I often don’t remember what I’ve said I usually find myself curled up crying knowing that I was out of control but that’s about it.

I WANT TO BE VERY CLEAR. I HAVE NEVER PHYSICALLY HURT ANYONE DURING THESE EPISODES THEY ARE ONLY EPISODES OF SAYING WHAT’S ON MY MIND WHICH I NEVER DO AND STICKING UP FOR MYSELF WHICH I NEVER DO.

It isn’t easy living like this and I have tried so many Doctors, medications, therapy, ECT, you name it without much relief. Now it’s different because my physical health is being compromised. I can’t travel, I have no energy for anything. All I know is that my Blood Pressure is really low. You think the Primary Care Doctor could’ve started with that? Bloodwork? A urine test? Nope. So plan B is to have my stents changed which the Primary Care Doctor couldn’t understand why I had stents in the first place.

She insisted that I must have had “Kidney Stones”. I said “No, I didn’t have Kidney Stones. Most people with Kidney Stones do not get Bilateral Ureteral Thickening like I have.” She didn’t like my answer. She saw on my chart that I had a Hematologist and asked “Why do you need a Hematologist?” I told her that my White Blood Cell Count was extremely low years ago so I was sent to him and he found a lot of abnormalities that usually go with Celiac Disease and when I went into Kidney Failure they were trying to rule out a specific disease that involves a genetic sequence so he also worked on that. I couldn’t understand why the more I spoke the more she looked like she smelled shit.

If I said Black she came back with White. After 20 minutes of this and my stutter becoming worse and worse I had enough. I remember standing and telling her that this was the end of our appointment. She told me I had to wait to do an Exit interview/paperwork. I said “This is my Exit”. And I walked out. This is what a degree from Harvard and an internship at one of the most prestigious Hospitals has gotten me. The second Doctor to treat me like garbage with the same credentials.

I don’t understand why it’s so hard. This Doctor’s nurse had more empathy and human kindness than anyone I’ve met in a long time. Why is it so hard to find that? Are Doctor’s sick of seeing Mentally Ill patients? Or is it patients that actually have a clue about their own care? I know there are Doctors that dislike patients who go on the Internet and learn about what their illness. But guess what? I’d be dead if I didn’t learn what I could and be my own advocate. No one is going to fight for this “crazy” person’s life except me.

Just some new earrings I made.


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