Tag Archives: Family Strife

PREDNISONE & OTHER INFO

My father is on Prednisone for Temporal Arteritis. It’s an inflammatory disease that is diagnosed by bloodwork AND a Biopsy of the Temporal Artery. The Biopsy is the important part. Of course my father refuses to get a Biopsy and is going on the diagnosis made by the Emergency Room Doctor at a Hospital that has tried to kill him several times and had a huge hand in my mother’s death.

The Prednisone itself is a harsh medication. It makes it harder for you to fight infections, causes weight gain, brittle bones, diabetes, and changes in personality and mood. I no longer recognize my dad’s face or his personality. His face is so bloated his eyes look closed. He angers easily and has a problem controlling his temper. This is not the man I know and love. It is hard to watch him change.

He will not listen to me even though I live with him and I’ve always been the closest person to him besides my mom. If my sister came over and saw him and spoke to him about his health, for some reason he would listen. She’s too busy. She didn’t even talk to him on Easter. She feels that he knows how to work a phone too and should call her. She is an idiot with her head in the sand. It’s her favorite place to stay. That way she isn’t responsible for anything.

I have to go to a Hospital I’ve never been to tomorrow for testing before surgery. She can’t go with me because she is working the “book sale” at her kids school. My dad is going with me. I don’t want him to. He is sick and shouldn’t be around other people that are sick.

I really need him to come off the Prednisone. His Dr. at Dialysis says he needs to come off of it but gave him no suggestions or names of people to see. They have infiltrated his fistula 5 times now. I become more disgusted every time he comes home. I called there once because I was angry. My father was furious with me. He’s so filled with pride it’s going to kill him.

He has done nothing in regards to a Living Will or a regular Will. His state of affairs is a mess. Someone will have to deal with his 300 pigeons and his enormous antique clock collection. My sister believes she can just open the doors to the pigeon coops and they will fly away. She’s in for a big surprise. My sister and brother know nothing about antique clocks either. They do not know what is worthless and what is valuable. I imagine a yard sale with over 100 antique clocks all priced at $10.

I’ve stopped worrying about it. They can have it all. I would rather have my dad. My plan is to take off as soon as anything happens to my father. Let them deal with the mess I’ve been dealing with for years. I’ll live in my car if I have to. L.A. has a very nice homeless population in this one area I know of. There is a car wash across the street where most of them wash up. It doesn’t scare me anymore to think of that happening to me. I would be more afraid of being hospitalized against my wishes.

Back to the Prednisone. I need to find a way to get him weaned off of it. I may have to play nice with my sister and get her to talk to him.

In case I forget I watched a YouTube video of a young woman who had a Nephrostomy. This is where they have 2 tubes coming out of your back to drain your kidneys. This may be in store for me. I really, really, hope not. I’ll have to weigh quality of life against quantity at that point.

Advertisements

Holiday Torment

Every year my mom cooked for the Holidays. She was an excellent cook. She made the best stuffing I’ve ever had. I would make sandwiches out of it with just stuffing and mayo. I know it sounds gross but it wasn’t. She did Thanksgiving and Christmas. She also did Easter and St. Patrick’s Day. There was only one thing that she didn’t like to do or wasn’t the greatest at and that was baking. That gene went to me.

I remember most of the time we would almost be done eating by the time my mom got to sit down to eat. I never appreciated that. I remember her trying to hide the turkey from me because I would steal the cooked crispy pieces of skin. I would still get to it. I would hear my name being screamed and I would laugh and hide. When the turkey was brought to the table there would be bald patches where I took the skin. It got to the point where she would just cut me off pieces of the skin and slice up the turkey before bringing it to the table. This was because she loved me.

All Holidays stopped for me February 21, 2008 at 10:07 p.m. This is when she passed away in front of me. She was probably gone before I got there but they had to make it look good.

My Annie, my mom, gone at 62. After a life filled with sorrow and pain and then finally some joy is taken away. How can you celebrate a Holiday after the light in the room is no longer there?

This year I decided we needed to do Thanksgiving. My father and I have a lot to be thankful for. Both of us have survived or cheated death this year. I would say that deserves a celebration. So I am doing all the cooking if I can keep my father out of the way! What a pain in the ass! He cooked in the Navy and thinks he knows everything. He knows Creamed Chipped Beef on Toast! I’m making an Italian Love Cake, Turkey, Stuffing, Mashed Potatoes, Gravy, and a Vegetable his Highness can agree on. I remind you this all has to be Gluten Free. Not so easy but if I’m left alone it’s easier. I just want the Italian Love Cake.

I’m hoping this will help change things. I’m also going to slowly bring in some Christmas decorations. My mother wouldn’t want us to be this way. She would want us to be loud and laughing like she always was.

My father and I will never be loud but we can try to have a good day together. Maybe.867961e557f4b8a6c46fdeba855a6ed4


%d bloggers like this: