I AM UNIQUE, QUIRKY, LOYAL, SENSITIVE AND MENTALLY ILL

I know if I don’t take some type of medication I will at some point find another way to ease my anxiety, pain, racing thoughts, fatigue, delusional thinking, compulsive behavior, and suicidal thoughts. The last one won’t be a thought anymore if I start drinking again.

I’m only getting the benefit of a small amount of my medications and I know this. Even when I was getting the full benefit I still wasn’t close to “normal”. Chances are I never will be.

I get frustrated at people who advocate for Breathing Therapy and Exercise as a cure/tool for depression but it WILL NOT WORK FOR ME.

I get pissed when I listen to Dr. Drew try to talk about a subject he obviously knows nothing about, treating mental illness with addiction. Everything he said to me was wrong. Most research and scientists have found that the undiagnosed underlying mental illness causes a person to seek relief from alcohol and drugs. The majority of mental health professionals do not know how to treat both and the person gets bounced back and forth or isn’t treated at all.

Then I read a blogger who doesn’t believe in Treatment Resistant Bipolar Disorder. I read the Blog expecting to see evidence, statistics, quotes from researchers, but it’s just their opinion. That’s fine everyone is allowed to have an opinion. The problem is when you have thousands of followers and your a supposed Bipolar Guru.

I also don’t appreciate someone repeatedly trying to tell me I’m wrong and why when I’ve already conceded. I dislike confrontation of any kind so I’ll eventually tell you what you want to hear to avoid conflict that will trigger stuttering and tremors. It isn’t worth it. I don’t know you and I have enough problems with my own family thinking I don’t try hard enough to get better and that I’m just lazy.

I think I’ll have my medical file tattooed on me to make it easier. When I mentioned “Life saving measures were taken” when I went into Kidney Failure both my Dad and twin sister didn’t believe me. Do they think you lose 100% of one kidney and 39% of the other because you have a cold? Or I had to stay in the hospital for over a week because they liked my company? I’m tired of having to prove that I’m sick it’s ridiculous.

They think because I lied when I was drinking that I’m a liar. That’s fair and I don’t blame them up to a point. I’m over 9 years sober and they now know why I was drinking and what I went through when I drank. I have not lied since I’ve been sober (except if someone asks me if they look like they’ve gained weight you can’t win with that one)

I’m not a bad person, I’m a little odd at times. My sense of humor is strange and I find things fascinating that most people don’t. I love to research a topic but I become obsessed sometimes if I can’t figure something out. Sometimes I’m quick to anger but I’m also the first to admit I’m wrong and I’ll feel guilty and cry for days until I make things right.

If I love you you’re lucky because you’ll get the shirt off my back and I’ll take a bullet for you (just ask W. about that one) my mom was the same way she protected those she loved.

That’s it for today. I’ve been binge eating for some weird reason. Not really weird it’s because CVS changed the Generic version of one of my medications. Instead of drinking I’m eating Gluten Free Frozen Yogurt, Gluten Free Cupcakes, Boar’s Head Dill Pickle Spears (I drink the juice too for my gallbladder), Rice Chex w/ Cinnamon & Sugar, Jax Cheese Puffs, I think there was more but I can’t remember lol

PRETTY LITTLE PILLS

Thump, thump, thump, is all I hear lately. It makes me uncomfortable and sad when I hear it for hours at a time. It’s a young boy playing basketball by himself everyday for hours on end. I’ve never seen him with anyone else he’s always alone. Being who I am I cry. For all I know he likes being alone and is perfectly fine with it. I’ve projected my own feelings into the situation. I do this often.

In the morning I talk a lot. I’m not sure why. When I have no one to talk to or I know I’m bothering someone I feel so horrible and embarrassed. Some of it is the medications but not all of it.

Actually I have no idea anymore what’s the medications and what’s me because still no one can tell me how all of these medications are breaking down in my system, if they’re breaking down at all, or if they’re building up into toxic levels. Serotonin Syndrome is a possibility but who knows?

I was thinking of surgery where they remove a section of the brain dealing with feelings and speech. I think the people around me would be much happier. I know I would be.

I admit I have abandonment issues. I’m not sure if I’ve ever really admitted it. It’s always been there since I was very young. I never wanted to leave my parents side even to be babysat by a relative. They used to use my Grandfather on mom’s side and every single time I would get sick. I threw up in his new van once and he wasn’t happy. I was probably 5. He was the one that forgot me at the carwash and no one came to get me for 2 hours. I’m not sure if this is the cause of the problem but I don’t think it helped.

I can’t take the roller coaster of feelings constantly going on to the extreme. I’m never just happy or sad. It’s either super excited my head’s going to explode or so hopeless I see no point in anything or anyone. There’s no middle ground ever.

I can’t keep dwelling on “if they had only diagnosed me sooner” because they didn’t and I have to deal with it now. Has it made everything harder? Yes. My physical health doesn’t help either. When you have autoimmune problems it changes everything. Your kidneys are pretty important when taking medications if you only have one of course it’s going to change the way medications work. I did the research myself and called the drug companies. I no longer wait for a Doctor to tell me anything. If I did I would be dead by now.

The medications do work a little bit for a short time but it doesn’t help that CVS keeps changing manufacturers. They are not all the same. I’ve felt a huge difference taking this new generic of Adderall it’s awful. It’s neon pink and the company has had class action suits brought against it several times. No one really cares when you’re on Medicare for Disability that’s Mental Health related what quality of medications you receive.

The Pharmacists know by the medications you take what your problem is. If you go to the same Pharmacy often on too good days and on really bad days, the first few times they understand. After awhile you start to notice the rolling of eyes when you approach, they don’t greet you like they used to, they make you wait longer than other people in line even though you were there first, and they act busy if you have a question. It becomes harder to ignore these things not just from strangers but from your family too.

That’s why I figure if I can’t feel anymore it won’t be so bad. If I stop talking too much maybe people won’t mind being around me sometimes. 48d7ba3841d0261ea7e2c947ad1ab86b

 

FLAGGED, DR. DREW, DARK MATTER RADIO, DOCTORS

I’ve noticed lately when I view the source for my Blog that items have been flagged. I’m not sure why this is but it concerns me. Should I be flagged for honesty or what I perceive is true? Should I lie about my life as a Bipolar person and living with Conversion Disorder? Should I lie about the mistakes Doctors have made or how I’ve been treated by the health system?

I don’t intend to start lying or sugar coating anything. This is the one place I don’t have to.

I’ve come across several Doctors who for some reason or another did not like a medication I was on and refused to give it to me while I was staying at their Hospital. The medications were not the kind you can just stop without serious side effects, one of them being seizures. They did anyway.

Dr. Drew believes if you are and addict/alcoholic you should not be given any medication similar to Klonopin or Adderall. He will be discussing such matters on Dark Matter Radio tomorrow night. Dr. Drew is an addiction specialist with a track record that isn’t the greatest. You only have to watch Celebrity Rehab to see that for yourself.

The biggest problem I have is Dr. Drew blaming Chris Cornell’s suicide on Ativan. He said he never should’ve been given the medication at all. What I want to ask Dr. Drew is has he ever been diagnosed with a mental illness? If not he has no idea what he’s talking about.

Cornell had talked about depression with periods of being over excited and loving everything and then having that feeling disappear in an instant starting when he was 12 years old. By the way men usually show symptoms of Bipolar Disorder at this age. He also began drinking around the age of 12 to numb or self medicate.

Once again every Doctor who sees a person with an addiction doesn’t dig further to see what’s behind the addiction so the underlying illness is never really treated.

In Chris Cornell’s case he may have been taking medications for mental illness, he had severe anxiety but like most people who take antidepressants or antipsychotics doctors will also prescribe something so you are not a zombie who drools all day. Most of these medications make you feel like you’re floating under water in slow motion. It isn’t fun. Without Adderall I wouldn’t be able to make it down the stairs or have a conversation. Without Klonopin my ulcers would be back and I would be back to dry heaving daily. Neither is any way to live.

No one has the right to say what medications are the right ones for you. Only you and your Doctor can decide that. If you are happy with them and can function on any kind of a “normal” level I say “Good luck! I wish I was you”. And “Screw ’em” to the people who disagree.

FINDING IT HARD TO CARE

With each passing day I find it harder to care what happens to me. I’m only worried about my Dad and that only lasts until he walks away from me or spends more time with his birds rather than have a conversation with me. I’m not paranoid. You can think it if you want but he did the same to my mom when he didn’t want to deal with anything.

My appointment with the Gastroenterologist is tomorrow, I’m still going alone. I get so worked up going to the Doctor. When it’s a new one I get my hopes up that they will have some answers or a magic cure. I have a tendency to start talking a lot and fast right away. Because I’ve researched what I’ve been diagnosed with I sound like a pain in the ass patient. It never goes well. The last time I tried waiting for the Doctor to speak first. She said “So what do you think I can do for you?” I was looking for a new General Practitioner so I was confused. I wanted to say “Umm, your job?”. What kind of question is that? I wasn’t happy when I left.

I’ve had way too many bad experiences with Doctors, not only with myself but watching what they did to my mom. I’ve been given the wrong diagnosis more times than I can count, had 2 Doctors tell me it was ok to have a “few drinks” for my stuttering, have one smile like a mad scientist while asking to videotape me, another lost pictures of my breasts when he had them developed at a local photo place (not kidding), been made fun of, talked down to and humiliated. Excuse me if I get flustered when I meet you.

I’m amazed at the things Doctors didn’t think was worth mentioning to me. I’ve come up positive for Monoclonal Gammopathy the last several years. People who have this almost always progress to Multiple Myeloma and no one thought it was important. The glands or lymph nodes in my neck are swollen and every other day I have a fever. My feet have been swelling again and these headaches are like nothing I’ve ever had before.

I can’t seem to control any of my emotions. I feel so alone it physically hurts. I want to scream “WHY DON’T YOU LOVE ME LIKE I LOVE YOU!” but it wouldn’t matter would it?

Sometimes I think if I was dying would they love me more? Then I think of my mom. My Dad was by her side the entire time and when I wasn’t working I was there too. But there were so many other people that should’ve been there and weren’t. I don’t even know who to put for an emergency contact.

I’m sad and tired. Something has to change.

Coping With Confusing And Scary Diagnoses

I’ve been told to stop saying “You don’t understand” by my twin sister and my dad. I’ve been told a lot by them lately and I’m reaching a boiling point. They don’t understand.

When you have lived most of your life thinking the way you are is just how it is, you’re supposed to suffer for some unknown reason. So you do and you get accustomed to it.

The day the wall crumbles isn’t really a relief. I didn’t know how to feel. I was in shock, I couldn’t think or speak. Then the anger came. Then the grief and feeling of loss. 20 plus years of my life wasted, countless Doctors seen who never picked up on a mental illness that I most likely started showing symptoms of by the time I was 10, I am now told.

I wasn’t really given any information on Bipolar Disorder just medication. I educated myself. I did get a second opinion to confirm the diagnosis. The state also did their own examination for Disability. I was still angry and my family didn’t want to talk about it. I do not do well in Therapy, I’ve been many, many, times. My brain shuts off as soon as I sit down. If they start with asking me to write where I see myself in 5 years forget it. If they want me to picture a stop sign during a stressful situation forget it. I don’t know why it’s so difficult for me.

When you’ve had several Doctors give you a diagnosis that is either life threatening or reveals you have had a traumatic experience you can’t remember and they want to use you as a teaching tool it’s rude. They could wait a day instead of hitting me with the bad news then asking if they could video tape my stuttering and tremors.

What I remember from past is pretty bad. To think that there is something worse scares me so when I was told about the type of Conversion Disorder I have I was devastated. The Doctor was filled with joy to have a live specimen for his students, colleagues and book. I did get a second opinion on this also and it was confirmed along with other disturbing results from a brain scan.

I’m having trouble coping with all of it. I fought with my sister again because she was crying and said “No one knows what it’s like to be tired all the time and in pain. I can’t do what I want with my kids and husband. I don’t want to live the rest of my life like this.” She was diagnosed with Chronic Fatigue Syndrome.

I have a life expectancy of maybe 57 because I have been diagnosed with Bipolar Disorder, Conversion Disorder, Chronic Kidney Disease Stage 3 (1 remaining kidney working at 68%), Celiac Disease (stays active), Autoimmune Diseases (related to Celiac), Chronic Low Heart Rate and Blood Pressure, Chronic Low White Blood Cells, Swelling in one part of my brain and a significant loss of white matter, Osteoporosis, and I’m 44 years old.

I’ve never been in love or a relationship. When I was young I thought I would have a house, husband, and children. Yes, I am responsible for my own actions. I did not know I would go into Menopause at 37 or that I had been dealing with a mental illness for many years. I chose to medicate myself with alcohol and spend time with people who hurt me physically and emotionally. I honestly believed I deserved it. I wouldn’t have had a child unless I was in a financially, mentally, stable situation so it is what it is.

Hearing my sister complain when she has a beautiful home, 2 gorgeous well behaved boys, a husband (I’ll keep my opinion to myself ), many friends, and is a stay at home mom, pissed me off. It’s always a contest with her. She can win. I give. If you can’t appreciate what you have you don’t deserve it. I’m done begging her to love me. I’m done begging people to “understand” what’s wrong with me.

If one more Doctor treats me indifferently or like I’m a moron I will not sit there quietly and take it. I’m done with that. I am a person with feelings and a brain that still works pretty well sometimes. I am not deaf, slow, or dangerous. I’m tired of being treated like dog shit you found on the bottom of your shoe.

WHEN YOUR OWN DOCTOR IS FRUSTRATED WITH YOU WHAT DO YOU DO?

The last time I went to my Psychiatrist in February, he was visibly frustrated with me. It was obvious he was out of options. He threw names of medications at me that “we” could try. The problem is that they were all chemically related to previous medications I’ve tried.

I couldn’t understand how he thought Trintellix would be that much different than Brintellix. There is a difference, there’s a T instead of a B. How is it that I know the components of these medications and he doesn’t? How is it that he still can’t tell me how Viibryd is broken down in the bodies system and if I’m getting the full benefit of it? Is having 1 kidney and an extremely compromised immune system preventing the antidepressant from reaching my brain? How is it that no one knows? This isn’t curing Cancer or figuring out the molecular structure of a foreign matter we recovered from another planet! (If you believe in such things)

Sorry. So, towards the end of our 12 minutes he suggests that if I’m that miserable “Why don’t I try taking myself off my medication to see what happens”. This kind of pisses me off as everything does these days.

I reached a point a few weeks ago where I didn’t care anymore and started to wean myself off of my meds. I then tried to change Primary Care Doctors. That didn’t go well at all.

People who don’t know me and read on a piece of paper my diagnoses tend to assume that I am less than intelligent. This is a poor mistake on their part. If from the beginning you talk to me like I am a child or I can’t hear you than we are going to have a problem. If you don’t listen to what I have to say and dismiss me we are going to have a bigger problem.

Conversion Disorder and Bipolar Disorder can work in mysterious ways. There are times where I will be so frightened I will curl up in the fetal position rocking my body back and forth while crying uncontrollably for hours. Time stops during these episodes. Then there are times where a red veil of rage clouds my eyes. I spew out whatever is in my head and I often don’t remember what I’ve said I usually find myself curled up crying knowing that I was out of control but that’s about it.

I WANT TO BE VERY CLEAR. I HAVE NEVER PHYSICALLY HURT ANYONE DURING THESE EPISODES THEY ARE ONLY EPISODES OF SAYING WHAT’S ON MY MIND WHICH I NEVER DO AND STICKING UP FOR MYSELF WHICH I NEVER DO.

It isn’t easy living like this and I have tried so many Doctors, medications, therapy, ECT, you name it without much relief. Now it’s different because my physical health is being compromised. I can’t travel, I have no energy for anything. All I know is that my Blood Pressure is really low. You think the Primary Care Doctor could’ve started with that? Bloodwork? A urine test? Nope. So plan B is to have my stents changed which the Primary Care Doctor couldn’t understand why I had stents in the first place.

She insisted that I must have had “Kidney Stones”. I said “No, I didn’t have Kidney Stones. Most people with Kidney Stones do not get Bilateral Ureteral Thickening like I have.” She didn’t like my answer. She saw on my chart that I had a Hematologist and asked “Why do you need a Hematologist?” I told her that my White Blood Cell Count was extremely low years ago so I was sent to him and he found a lot of abnormalities that usually go with Celiac Disease and when I went into Kidney Failure they were trying to rule out a specific disease that involves a genetic sequence so he also worked on that. I couldn’t understand why the more I spoke the more she looked like she smelled shit.

If I said Black she came back with White. After 20 minutes of this and my stutter becoming worse and worse I had enough. I remember standing and telling her that this was the end of our appointment. She told me I had to wait to do an Exit interview/paperwork. I said “This is my Exit”. And I walked out. This is what a degree from Harvard and an internship at one of the most prestigious Hospitals has gotten me. The second Doctor to treat me like garbage with the same credentials.

I don’t understand why it’s so hard. This Doctor’s nurse had more empathy and human kindness than anyone I’ve met in a long time. Why is it so hard to find that? Are Doctor’s sick of seeing Mentally Ill patients? Or is it patients that actually have a clue about their own care? I know there are Doctors that dislike patients who go on the Internet and learn about what their illness. But guess what? I’d be dead if I didn’t learn what I could and be my own advocate. No one is going to fight for this “crazy” person’s life except me.

Just some new earrings I made.

I THINK WHAT YOU NEED TO DO….

If there is one thing that bothers me more than anything, it’s when someone tells me what they think I need to do to “get better”. What I hear is “you’re not trying hard enough”. I then start to think that people around me are thinking that I don’t want to get better. That doesn’t bother me it breaks me.

I remember a time when my Dad would come home from work and give us “foot rides”. He had to wear steel toed boots to work and he was on his feet for 10 hours a day. He didn’t care how tired he was when he got home, I would wrap myself around one leg and my sister around the other. My Dad would then drag us around the house. After he would give us Rollo’s that he bought from work everyday just for us.

I remember the tire swing he made us in the backyard. I spent a lot of time by myself watching squirrels, chipmunks, butterflies and every other kind of creature while my Dad did yard work. I remember watching my Mom cook and feeling so calm as I watched her hands move.

If anyone thinks that I wouldn’t want those feelings back than they have bigger problems than I do.

Everyone pushes me to go to Group Therapy. What people who have never been to Group Therapy don’t understand is that where I live everyone is put together. Your group could have someone similar to you or a group largely made up of people that can’t function as well. I’ve been to many different Group Meetings in my area. Something scary always happened. Maybe I bring bad luck. The last straw was the man who pulled out a butcher knife and held it to a staff member’s throat. I was standing next to him and was told not to move. It was fun when the S.W.A.T. team showed up pointing their guns at him and me!

Good thing I’ve been peppered sprayed before because that also happened at another Group Therapy session. I wasn’t sprayed I just got the residual effects. So much fun! I think after about Group number 30 I quit. It’s worse when you’re hospitalized. Not only is there mentally ill but they also put you with people who are detoxing. This has happened twice.

Stop telling me what you think I need to do to “get better” and try listening to me or, now I know this idea is out there but how about spending some time with me? Or you could stop ignoring me and judging everything I do and say.

Just a suggestion that will never be seen or heard.