Tag Archives: Celiac Disease

HAVING AN EXPIRATION DATE

I’ve been past my “suicide” phase for years now. I still think about it on really bad days but not like I used to when I self-medicated with alcohol. When I self-medicated with alcohol I didn’t just think about it. I’ve been sober close to 10 years now.

Seeing the results of my blood work I was scared. I didn’t know my kidneys were getting worse so fast. They use your GFR to determine when you should go on dialysis or go on the list for a kidney transplant. When the number hits 30 your Doctor starts preparing you for your options.

My GFR was a 40 one year ago. I kept putting off going in for surgery to have my ureteral stents changed. Part of the reason was the Depressive Episode I was in for a very long time. The other part was just fear. You know when something is wrong with your body. I knew I was losing weight again but there was some swelling in my feet and ankles. The color of skin is the same as chalk but with dark circles under my eyes. I’ve lost muscle mass specifically in my temples. I didn’t notice how bad until this morning. They are so hollowed out I could collect rain in them. I’ve been a little short of breath and having trouble doing simple tasks.

I’m pretty sure I won’t make it on a transplant list. I checked again today. If you have a mental illness, a past history of drug/alcohol abuse, or an autoimmune disease, you usually have a hard time getting on the list. I have all three. I have twin who could donate her kidney but before I could ask I was told she wouldn’t. She had to think of her children. Pretty sure her husband had a big influence on this decision.

Because no one knows why I went into Kidney Failure, or why my kidneys are getting worse, no one is sure about dialysis. My other option is to have a tube coming out of each side of my back just under my shoulder blades. The tube would drain fluids out of my system and goes down each leg. Someone has to learn how to clean and change the drains which I don’t have anyone to do this.

Before I make any big decisions I’ll go to my appointment on Tuesday and see how much longer I can keep the stents. If they don’t send me to the ER then I’m going on a Road Trip to Deep Ellum, Texas. I don’t care what anyone says. I have limited time to do what I wanted to do. So I’m going to try it. What’s the worse that could happen? lol

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BUCKET LIST (DIDN’T THINK I WOULD NEED ONE)

For someone who wanted to die for so many years to now feel like there isn’t enough time is strange. I haven’t done a lot of the things I’ve wanted to do. I don’t have insurance so there is no money to bury me. I don’t want my Dad to have to worry about it.

My kidney function has decreased and is one of the reasons I’m having so many problems with my medications. Scans of my brain from years ago were looked at by the team of Doctors I have now. They weren’t able to get them previously. The results were less than good. This was from 8 years ago so I have to have another scan as soon as possible. The previous one worries them because of the swelling in one area, the pressure behind my eyes, the lightning bolt in one area, the extreme loss of grey matter and some white matter. Plus the fact that I did have an infection in my brain at one time.

They were appalled that no one had done more scans. At least I felt better that I wasn’t the only one who thought it was odd.

The mental health part is worse than anything. I go from feeling okay to that 12 foot hole of darkness with a hollow ache in my chest. The feeling of complete hopelessness and that I am insignificant in this World is so overwhelming the only way to get through it is to get in the fetal position in the dark while screaming and sobbing into a towel.

BUCKET LIST

  • Work with Exotic Wildlife at a rescue or rehabilitation center.
  • Spend a day with Wolves.
  • Meet Dave Navarro so I can ask him questions about addiction, mental health, relationships, art, movies, TV, watches, eyebrows, etc.
  • Spend a full day with just my dad and my sister talking about our best memories.

That’s pretty much it. I have an estimated 8 to 10 years if I’m lucky. Somehow I don’t think any of my bucket list will happen. Right now I’m tired and my relationship with my Dad and sister isn’t great. I haven’t kept them informed about the Doctor’s insights. It wouldn’t do any good. I can try to achieve some small things when I can.

Today it’s dark and rainy so I’m not feeling great and just want to sleep. I will try not to because I don’t want to waste any time.


WHY I’M TOO HONEST

I wouldn’t want anyone to go through what I have in my 44 years on this Planet. I talk about my past and my diagnoses as honestly as I can remember in case someone reading recognizes some of these symptoms or behaviors in themselves. No one should have to wait over 20 years to receive a diagnosis. When you’ve had a mental illness that has gone undiagnosed for so long it’s almost impossible to treat.

The team of Doctors I have guess that I started showing signs as early as 10 years old. I wasn’t diagnosed as Bipolar until I was 35/36. They wonder about my earlier years because I started so early using soothing mechanisms. I would rock back and forth in my crib while standing, when I grew a little older I bounced my head on my pillow to fall asleep and bounced my head off of the car’s head rest whenever I was in the car.

I also couldn’t keep myself from bouncing one leg up and down while sitting. I always had to be doing some kind of repetitive motion to calm myself down.

The Doctors also found it odd that I had so many nosebleeds and had to have my nose cauterized 3 times. Finally they took out my adenoids and slowly the nosebleeds stopped. I started having them as a toddler and they didn’t stop until I was about 10 years old.

There are days where I want to donate myself to Science and tell them to scan my entire body and do every test available because I’m tired of living this way.

I have been leaving my sister alone. She eventually sent me a text saying she loved me. I sent her one saying I was frustrated because on good days when I don’t want to talk about mental or physical health but everyday stuff I have no one to talk to.

The response I received was that I should volunteer somewhere it would make me feel better.

Not “Why don’t we get together and talk?” or “I’ll call you and we’ll talk right now” nope I was told I should volunteer somewhere. I guess it’s better than before when she kept telling me to go to Group Therapy to make friends. It wasn’t until she actually attended a few Group meetings that she understood what I was talking about. They put everyone together in the Groups, low functioning, high functioning, Bipolar, Borderline Personality, Schizophrenic all together in the same groups. Some are not even coherent they are so medicated. It took almost 2 years to get my sister to stop with the Group thing.

I don’t know why I keep expecting a different outcome. My dad was sitting on the couch near me, I tried to talk to him and he either couldn’t hear me or was ignoring me. When I finally got his attention and started to talk he fell asleep. It’s hard not to take that personally. I start thinking everything must be true. I don’t belong here, I never did, I don’t belong anywhere. I asked my dad to tell me when he first felt butterflies in his stomach or anxiety or scared. He was having trouble answering. I said “How did you feel when you were told mom had twins?” He said ” I didn’t really care at that time it didn’t matter to me” I thought I would break. My mom didn’t know she was having twins until we came.

Then my dad said “Oh I know I felt butterflies when my Russian Tumblers were up against this other pair of Tumblers and I didn’t think they would win Best In Show”. I’m not sure why I was surprised that he would feel anxious about his birds they almost ruined his marriage, actually they pretty much did. They took his health, they’re the reason he’s on dialysis, and he spends more time with them than anyone or thing.

I really don’t think I can I spend another winter here with my dad and sister. The weather alone depresses me. I need to look for a place that’s affordable, sunny, and has museums or wildlife. I would love a pool too. But I’ll take what I can get. I just don’t think I can do it. I already feel the gloom and doom and it’s only September.


FINDING IT HARD TO CARE

With each passing day I find it harder to care what happens to me. I’m only worried about my Dad and that only lasts until he walks away from me or spends more time with his birds rather than have a conversation with me. I’m not paranoid. You can think it if you want but he did the same to my mom when he didn’t want to deal with anything.

My appointment with the Gastroenterologist is tomorrow, I’m still going alone. I get so worked up going to the Doctor. When it’s a new one I get my hopes up that they will have some answers or a magic cure. I have a tendency to start talking a lot and fast right away. Because I’ve researched what I’ve been diagnosed with I sound like a pain in the ass patient. It never goes well. The last time I tried waiting for the Doctor to speak first. She said “So what do you think I can do for you?” I was looking for a new General Practitioner so I was confused. I wanted to say “Umm, your job?”. What kind of question is that? I wasn’t happy when I left.

I’ve had way too many bad experiences with Doctors, not only with myself but watching what they did to my mom. I’ve been given the wrong diagnosis more times than I can count, had 2 Doctors tell me it was ok to have a “few drinks” for my stuttering, have one smile like a mad scientist while asking to videotape me, another lost pictures of my breasts when he had them developed at a local photo place (not kidding), been made fun of, talked down to and humiliated. Excuse me if I get flustered when I meet you.

I’m amazed at the things Doctors didn’t think was worth mentioning to me. I’ve come up positive for Monoclonal Gammopathy the last several years. People who have this almost always progress to Multiple Myeloma and no one thought it was important. The glands or lymph nodes in my neck are swollen and every other day I have a fever. My feet have been swelling again and these headaches are like nothing I’ve ever had before.

I can’t seem to control any of my emotions. I feel so alone it physically hurts. I want to scream “WHY DON’T YOU LOVE ME LIKE I LOVE YOU!” but it wouldn’t matter would it?

Sometimes I think if I was dying would they love me more? Then I think of my mom. My Dad was by her side the entire time and when I wasn’t working I was there too. But there were so many other people that should’ve been there and weren’t. I don’t even know who to put for an emergency contact.

I’m sad and tired. Something has to change.


CELIAC DISEASE (What You Think You Know But Don’t)

Celiac Disease is often misunderstood, even in the Medical Community. It’s difficult trying to explain to someone who should know why you can’t take a specific medication. The Pharmaceutical companies are regulated by the FDA and are supposed to disclose if they use Gluten as a binder in their medication. This isn’t a perfect world and not everyone will tell the truth. Generics are not under the same guidelines as Brand Name medications and are not monitored as closely by the FDA. These are facts.

CELIAC DISEASE

Celiac is a serious genetic autoimmune disorder where the ingestion of gluten leads to damage of the small intestine. When your small intestine is damaged nutrients can’t be absorbed.

Celiac has been linked to various other autoimmune disorders and cancers.

To get a true diagnosis you should have blood test first and then a biopsy. The biopsy is crucial.

A LONG LIST OF SYMPTOMS~ WHAT I HAVE WILL BE IN ITALICS

  • Bad breath
  • Gum Disease
  • Mouth Sores
  • Swollen/Bleeding Gums
  • Erosion of Tooth Enamel
  • Early Menopause
  • Swings in Hormone Levels
  • Heavy Painful Periods
  • Infertility
  • Swollen bladder/cervix
  • Acid Reflux
  • Bloating
  • Constipation
  • Diarrhea
  • Nausea
  • Loss of Appetite
  • Stomach Pain
  • Ataxia
  • Back Pain
  • Joint Pain/Stiffness/Swelling
  • Leg Cramps
  • Anemia
  • Deficient in Vitamin D
  • ADD
  • Anxiety
  • Brain Fog
  • Memory Loss
  • Asthma
  • Brittle Nails
  • Bruising
  • Dark circles under the eyes
  • Pale skin
  • Burning scalp
  • Dandruff
  • Eczema
  • Bladder Infections
  • Blurred Vision
  • Chills/Fever
  • Chronic Fatigue
  • Vertigo
  • Hair Loss
  • Headaches
  • Hypothyroidism
  • Seizures
  • Sinus Pressure
  • Irregular Heartbeat

Celiac can also cause you to have a low white blood cell count, arthritis and osteoporosis.

When you’ve been diagnosed with many other disorders/diseases and there’s an overlap of symptoms it’s extremely hard to know what’s causing what.

My twin also has Celiac and despite being Gluten Free like I am still suffers the symptoms. This happens to some people and it’s called Refractory Sprue. When this happens your chances of different types of cancer go up.

It’s difficult being a walking medical mystery. What do you do when no one has answers for you? I know my medications have not been working and have said so for the past year. I’ve asked every doctor if it’s due to Celiac, Kidney Disease, Absorption Problems, and not one can answer me. I get worse every single day. My Dad is sick of hearing about it. My sister is sick of hearing about it and thinks I’m being dramatic and I just want attention. I don’t get attention. I’m ignored. If no one knows the answer they don’t want to deal with me. So I hide in my room and hope it all goes away. The pain is bad in my sides it’s like a hot poker constantly stabbing me in the side up to the bottom rib. This started after my last stent exchange almost like he didn’t hook it on right. I’m not saying a word. I’m done with it.


DO YOU REALLY KNOW WHAT CELIAC DISEASE IS? (I Bet You Don’t Know All Of It)

First I want to start by saying that I find it absurd my computer keeps telling me I’m spelling Celiac wrong. Why? Because I have Celiac Disease. I was diagnosed with it shortly after being diagnosed as Bipolar. Yup, it was a wonderful year. lol

I’ll start with the basics for anyone who is new to this.

CELIAC DISEASE: An autoimmune disease caused by the abnormal functioning of the immune system that produces antibodies against your own tissue.

CAUSE: The cause is gluten. GLUTEN: a mixture of 2 proteins (wheat, rye) that helps food maintain it’s shape, acts as a binder, gives dough it’s elasticity, and the fermentation process of some alcohol.

WHERE IS IT FOUND?: Gluten can be found in unexpected places like cosmetics, medications, some stamps and envelopes, bread, alcohol, cereal, processed meats, and many more products.

It only takes 1/64 of a teaspoon of gluten to cause intestinal damage to a person with Celiac Disease.

How I Learned About Celiac

Some of you may know that I have a twin sister. She had followed the love of her life to California so he could pursue his music career. Things were going well for him but she was having trouble fitting in with the wives and girlfriends. She was homesick and depressed. She also knew that our mom wasn’t doing well.

For a long time she was having severe heartburn, circles under her eyes, urinary tract infections, fatigue, anxiety, and trouble concentrating.

Before she left for California she had seen a doctor about her heartburn and found out she had significant scarring on her esophagus. She chose to ignore it.

A few years went by and they came back home. When she was pregnant with her first child my mother was at her worst. A week after giving birth my mother passed away. Her physical symptoms became too much to ignore any longer.

MOST COMMON SYMPTOMS 

  • Mouth Sores
  • Eroding Tooth Enamel
  • Back Pain
  • Joint pain/stiffness/swelling
  • Burning in the joints
  • Anemia
  • Low vitamin B12 and D
  • Brittle nails
  • Burning scalp
  • Pale skin
  • Hair loss
  • Headaches
  • Vertigo/Dizziness
  • Weight changes
  • Chronic fatigue
  • Sinus pressure
  • Hypothyroidism
  • Bloating
  • Constipation
  • Diarrhea
  • Nausea
  • Stomach pain
  • Infertility
  • Miscarriages
  • Brain fog
  • Irritability
  • Short temper
  • Dementia
  • Malnutrition
  • Osteoporosis
  • Pancreatic disease
  • Gallbladder disease
  • Liver disease
  • Diabetes
  • Ataxia- loss of balance, clumsiness due to damage of the nervous system
  • Peripheral Neuropathy- numbness and weakness in the legs, face, arms, feet, and hands
  • Acid reflux

COMMON SYMPTOMS

  • Early menopause
  • Swollen Bladder
  • Leg cramps
  • Muscle spasms
  • Bruising
  • Asthma
  • Bladder Infections
  • Blurred vision
  • Fainting
  • Irregular heartbeat
  • High blood pressure
  • Low blood sugar
  • Night sweats
  • Seizures
  • ADD
  • Anxiety
  • Memory loss
  • Night terrors
  • Suicidal thoughts

So what does all this mean? At first I was like everyone else. I thought that if she ate bread or pasta she would just have problems with her stomach for a few days and that would be it. I was so wrong.

It isn’t until you walk in someone else’s shoes that you truly understand what they go through. It wasn’t until I was on my 6th medication that I told my doctor that my sister had Celiac Disease and asked if it was possible I had it and if so could it be the reason medications were not working.

He looked at me with eyes wide. He told me to get a blood test and biopsy as soon as possible. Unfortunately almost all medications use gluten as a binder. Companies will say that they do not but if it is a generic brand they are not strictly monitored by the FDA.

I came back positive with the blood test and the biopsy. I do not have Celiac like my sister. Mine is more of the Cognitive issues, extremely low white blood cell count, almost no vitamin D, Gallbladder Disease, Chronic Kidney Disease, Early menopause, Osteoporosis, Asthma, Blurred vision, Vertigo, Ataxia, Peripheral Neuropathy, Headaches, Sinus pressure, Hair loss, pale skin, circles under my eyes, brittle nails, back pain, Anemia, some weird IgA Deficiency that no one could really explain but might have to do with the Kidney Failure, and Vitamin D resistant Rickets. I love the last one.

My Bipolar medications probably do not work the way they normally would. I do not absorb anything like a “normal” person. If they have Gluten in them than I’m definitely going to have problems. I also have 1 kidney doing the work of 2. The pharmacy is sick of me asking about my medications because they change distributors constantly. At this point they tell me what I want to hear.

SOCIETY

When I see a celebrity making jokes about this it makes me a little angry. A celebrity chef saying “Eat some pasta already!” doesn’t help to inform the public. She didn’t mind making a profit off of some gluten free recipes after though.

When I see a celebrity going “gluten free” because they think it’s healthier, they will lose weight, or are just jumping on the new “trend” I get a little pissed. I wouldn’t make a choice to live this way. Having to read every label from shampoo to crackers is exhausting. I hardly ever go to restaurants and when I do I usually have to get a side salad. They almost always bring it with croutons even though I tell them I have an allergy. When they bring it back I know they just picked the croutons off. I don’t want to make a big deal out of it so I eat it. I know it’s bad but it’s also embarrassing.

I’ve said it a million times, think before you say something about a subject you may not be completely educated on.

I just read my symptoms and I sound like a real catch. lol

If we keep educating ourselves, listen instead of waiting for our turn to speak, and advocate for those who can’t advocate for themselves, maybe we still have a chance.

 


For La Sabrosona!

This is for La Sabrosona who is a remarkable woman.

This can be made Gluten Free and Alcohol Free if you chose. Everything is adaptable in life

INGREDIENTS:

  • 5 Bananas
  • 3 Eggs
  • 1 Cup Pecans
  • 1/2 Cup Butter
  • 1 Tsp. Butter Extract
  • 1 14 Oz. Can of Sweetened Condensed Milk
  • 2 Cups Whole Milk
  • 1 Cup Brown Sugar
  •  1/2 Tsp. Cinnamon
  • 1/8 Tsp. Salt
  • 1 Tbsp. Vanilla Extract
  • 10 Cups Cubed Bread (Regular or GF)
  • 4 Tbsp. Rum or Rum Extract (You can eliminate alcohol or Extract is GF)

Heat oven to 200 and bake cubed bread for 10 minutes.

When that’s done let bread cool and increase oven temp. to 375. Spray a 9 inch pan or baking dish with non-stick cooking spray and melt 1/2 cup of Butter in the pan. Remove from oven and sprinkle the Brown Sugar evenly over the melted butter. Set aside.

Slice Bananas lengthwise or in circles. Lengthwise is faster. Soak them for 3 to 4 minutes in Rum or Extract then place in pan over the Butter/Brown Sugar make sure bottom of the pan is entirely covered. If you have to, cut Bananas to fit any gaps.

In a large bowl combine Milk, Sweetened Condensed Milk, Eggs, Vanilla, Butter Extract, Salt, and Cinnamon. Whisk until frothy then add cubed bread. Let it sit for about 10 minutes.

Stir in Pecans.

Spoon mixture over bananas and press down firmly. You might want to put a baking sheet underneath for spillage.

Bake at 375 for 60 minutes until center is set and bread is golden brown.

Allow to cool 20-30 minutes then invert onto a platter. If using Rum you can flambe.

If doing Gluten Free make sure you read labels. Not all Vanilla Extract is GF or Rum Extract. I don’t think you need the Butter Extract it seems kind of redundant. I’ve also done a Bananas Foster using Maple Syrup and no alcohol. No one noticed much of a difference. If you’re from New Orleans you will and I apologize for the tweaking. Happy Baking!

P.S.  Living Gluten Free because you have Celiac isn’t always fun. It’s hard to find food that doesn’t cost a lot. Forget going out to eat and when you’re not feeling well you can never find something quick. It only takes a bread crumb the size of a grain of sand to make me sick. Some people only have to touch Gluten. There are Celiac sufferer’s who’s Celiac is always active because it was detected too late. This can cause many problems involving the Immune System and some Cancers. It isn’t a fad for some of us. For some of us it is a serious Disease. It could be the reason my Kidneys keep failing. So show some tolerance. Thanks!

 

 


So You Think You Know Celiac?

The world thinks it knows about Celiac Disease from what they have seen on TV or read in magazines. They don’t. It isn’t some little tummy upset that goes away in a few hours. It is an Autoimmune Disease. It leads to other Autoimmune Diseases.

When I hear a Late Night talk show host cracking jokes about it I feel the need to throw something at the screen. When Rachel Ray said “Eat some pasta already!” I wanted to ask her if she would tell a kid with a nut allergy to “Eat some nuts already!”.  Yes the nut allergy can be seen right away where the gluten allergy most times can’t. The nut allergy is life threatening immediately where the gluten allergy is life threatening over time. Here is the biggest difference. The nut allergy is easily detectable where the gluten allergy goes undetected for years. This causes long term damage that sometimes can’t be reversed.

I’ll never get the 1 foot of height I’ve lost in the last year back. I’ll never regain the cartilage in between the discs in my back either. I have Osteoarthritis and Osteoporosis at 42. It started when I was much younger. I have arthritis in my Pelvis and Hips. I have been told that a Hip Replacement is in my near future for my right hip. It clicks when I walk.

Malnutrition is my middle name. Vitamin D is non existent to me. At this point I would probably have to go for infusions. But getting my kidneys healthy comes first.

I used to have extremely thick, curly hair. I don’t anymore. Another symptom. I have a lovely bald spot on the right front side. When I wash my hair it comes out in clumps. I can no longer grow my fingernails either. My breath is not exactly pleasant. My sister and I call it “Celiac Breath”. It’s like you just ate a bowl of crap.

I also have Leukopenia where I always have a low white blood cell count leaving me open to infections because my system is compromised. Monoclonal Gammopathy is another disorder I have. I’m not sure what it is but it’s connected to a protein in the blood. I also have Dermatitis Herpetiformis which is an autoimmune disease that presents in a rash. This is under control but restricts my diet even further. The Chronic Fatigue and pain in my joints and muscles is probably the worse. I can’t take anything for it. When I wake up I can’t even make a fist and lifting my head off the pillow is torture.

No matter what I do or how hard I try my Celiac stays active. My sister’s does too. Add Bipolar Disorder, Conversion Disorder, and Acute Kidney Failure to all that and you never know what’s what. Doctors get sick of you fast. I get sick of Doctors. I’m tired of taking so many pills. Pills that probably have gluten in them. I’m tired of eating Rice Chex for every meal. Most of all I’m just tired. It takes up to 6 months to heal from being glutened. I never heal. Or I’m just always sick. Who knows? I look at what I’m diagnosed with and laugh. Rickets??!! Some this stuff they have written down sounds like I should be in a bubble. But no one is taking it seriously. The swelling on my brain? Still waiting for someone to do something about that. It’s only been 7 years. I kind of give up. Whatever happens, happens.


Am I Sick?

Today I feel so sick I couldn’t lift my head until about an hour ago when I started vomiting. Sometimes I don’t know if I’m really sick or not. With everything going on it’s hard to pin point a cause.

The other day I ate GF Oatmeal and Cherios which are supposed to be gluten free. I have not felt good since. I also went back to 2% milk instead of lactose free because it’s too expensive. My feet and calves have been swollen and I’ve had a small fever and headache with a stiff neck. I can’t move. It’s like walking through wet cement. I hate throwing up. It reminds me of my drinking days.

My mother was sick all the time. It got to the point where no one showed any kindness or sympathy. I’m at that point now. How I regret my treatment of her. Now I know what it’s like. Laying on the couch afraid to move my head because I know what will happen. My dad coming in and yelling at me for being on the couch all day until I roll over and vomit. Then I have to clean it up even though my head is pounding. My sister shut her phone off as usual. The puppy peed in my bed last night. I’ve pretty much had it. The screen is hurting my eyes. If it continues I’ll go to the ER maybe. I’m just too tired.


What You Don’t Know About Celiac Disease Could Kill You

I was diagnosed with Celiac Disease a few years ago. I didn’t have the usual symptoms of stomach upset and pain. My twin sister had been diagnosed with it for quite some time. She kept telling me to get the blood test done at least. I didn’t listen until my Psychiatrist found out my sister had Celiac. He thought there was a good chance a lot of the medications were not working like they should because I wasn’t absorbing them into my system. So I went for the blood test and the biopsy which both came up positive. I had been living with it for quite some time and had done some damage. Here is a list of symptoms/disorders that can be or are caused by Celiac Disease. I have most of them.

Early Menopause- I started at 41

Hormonal level swings

Swollen Bladder/Cervix

Loss of appetite

Nausea

Stomach Pain

Back Pain- Big one for me also causing osteoporosis

Joint Pain, Stiffness, and Swelling- Not fun

Leg Cramps- Calves in the middle of the night

Muscle spasms

Anemia- also a big problem for me

Low vitamin D- I was diagnosed with Rickets

Low Vitamin B12 and Calcium

ADD

Anxiety

Brain Fog

Panic Attacks

Depression

Irritability

Irrational Anger

Loneliness/Isolation

Loss of Interest in Daily Activities

Memory Loss- another problem for me

Mood Swings

Suicidal

Bruising

Dark Circles Under Eyes

Pale Skin- I’m talking Casper the Ghost

Asthma

Bladder Infections

Blurred Vision

Chills/Fever

Chronic Fatigue

Vertigo- I hate this one

Hair Loss- scary when it first starts

Migraines

Irregular Heartbeat

Seizures

Sinus Pressure- another fun one that cause 2 cysts in my sinus cavity

Trouble Sleeping

Liver Disease

Pancreatic Cancer

Leads to other Auto Immune Diseases and some cancers

The problem is some of these symptoms are the same as Bipolar. Generic Medications are still made with gluten as a binder. Gluten is everywhere. The public dismisses it or jokes about. A bread crumb the size of a grain of salt can contaminate me and take me 6 months to get better. My medications won’t work correctly if I get contaminated. For the first few days it’s like swimming through wet cement with every bone in your body broken. It’s very possible I went into Kidney Failure because of it. They don’t know. It costs me 3 times more for food than the average person. My diet consists of Rice Chex because that’s what my body can handle. I can’t eat corn, milk or gluten free oats anymore.

As far as being Bipolar is concerned no one knows which end is up. So I just have to deal. I suffer from everything on this list except seizures. Plus I now have problems with my White Blood Cell Count and Bone Marrow due to an Auto Immune Disease caused by Celiac. It isn’t as simple as people think. Before speaking about something you don’t know educate yourself.


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