Tag Archives: Autoimmune Diseases

WHO ARE YOU SUPPOSED TO BE?

People say I’m the life of the party

Cause I tell a joke or two

Although I might be laughing loud and hearty

Deep inside I’m blue

So take a good look at my face

You’ll see my smile looks out of place

If you look closer it’s easy to trace

The tracks of my tears

Outside, I’m masquerading

Inside, my hope is fading

If you look closer it’s easy to trace

The tracks of my tears

Smokey Robinson

When you have a twin who does not have a mental illness you get to watch that person have a “normal” life. When your twin was also thin and popular it makes it worse. From the beginning I just wanted her to love me more than anyone else. I thought we were special because we were twins. I thought we were supposed to have a strong bond that would last forever. It turns out I was the only one who felt this way.

W became my sister and was there for me when no one else was. The times I had no choice and had to call my sister I was met with disgust and judgement. I hadn’t been diagnosed yet but I don’t think it was a secret to anyone that something was wrong. It wasn’t a secret to me, I just didn’t want to admit I was like some of my family members. I didn’t want to live in an assisted living community with other mentally ill people and a case manager who could come over any time they wanted to. I didn’t want someone else deciding what I did with my money, where I went, what I put in my body or didn’t put in my body. I had seen it all when I was younger and it was horrendous. My Aunt and Uncle had miserable lives when the State was in control. My Uncle chose to be homeless instead of dealing with them. I don’t blame him.

My twin sister refuses to understand how sick I am. She refuses to see how sick our Dad is. She refuses to see that I’m at a breaking point watching him waste away, being the one he takes his anger out on, and being alone. Yesterday he fell and hit his head. When he came inside it was bleeding a little but he was unsteady on his feet. I made him sit down. He then called the dog by the bird’s name four times even though I told him it was the dog not the bird. He looked at me like I wasn’t there.

I think he’s taking too much Klonopin because he doesn’t know he’s already taken it. I see him popping them like they’re Tic Tacs and it scares me. He’s on a low dose .50 mg but still he doesn’t have functioning kidneys. I tell my sister and she says “Hmm”. Pretty much her response to everything I say.

She only called today to tell me about her 6th vacation. They rented a house in Vermont and they took the kids to see Green Day so the oldest could see his Godfather and the youngest could meet the rest of the band.tear How fun for you and your family. Personally I don’t think it’s a great idea to bring the kids backstage but hey what do I know?

I look and I see a beautiful 44 year old woman with 2 of the most beautiful well behaved loving children I’ve ever been around. A woman with a nice house and a fenced in backyard. A woman with a plethora of friends to talk to or get coffee with. Who between her and her husband have so many contacts they can take 6 vacations in 3 months and not worry about anything else. A woman who graduated college but told me I got all the attention because I f*cked up all the time so no one noticed her achievements.

I remember my mother introducing us at a large family function. She said “This is my daughter D she’s in college and this is my other daughter.” No name and no description. At least she didn’t do what the rest of family the did D is the skinny one and Da is the fat one that’s how you tell them apart.” YOU F*CKING IDIOTS WE ARE FRATERNAL TWINS I HAD BLOND HAIR SHE HAD AUBURN HAIR WE LOOKED NOTHING ALIKE IN THE FACE MAYBE IF YOU WEREN’T SO INBRED YOU’D HAVE HALF A BRAIN TO TELL US APART.

My apologies again there was only that one incidence of inbreeding that I know of and she turned out to be a beautiful and smart woman. Again, that I know of because my Grandmother’s side of the family is difficult to trace and the woman herself was sketchy as hell.

I have so much baggage and family secrets/history it’s like Peaky Blinders/Justified/The Decline of Western Civilization all rolled into one.

I’m trying to say it’s heartbreaking and lonely to know the person who is supposed to be there for you and love you isn’t there. It hurts all the time to be so aware of how my twin feels about me. I miss the one person I could count on and talk to, I could cry for hours and she would just hold me and tell me it would be ok. No one does that anymore. I’m not allowed to cry or I get yelled at. No one just hugs me and says everything will be ok or says they love me no matter what I do or say. I need that now because I’m like Jekyll & Hyde lately and there is no warning. I don’t always remember what I’ve said or done or why you’re mad at me.

P.S.~CVS Changed the Generic Brand of Topamax I take and it’s been like starting over as far as side effects go. I feel pretty horrible.

 

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