TAKING RESPONSIBILITY AND TOXIC PEOPLE

I had surgery to replace my Ureteral Stents on May 14th. My twin sister drove me because my Dad has dialysis on Mondays. As soon as she got in the car I felt the tension. I was already feeling anxious and wasn’t allowed to take any of my Bipolar medications before the surgery. I don’t remember what started it. I think I started crying and it annoyed her. We also got lost on the way to the Hospital and she refused to listen to me. She wanted to drop me off at the door. I told her she had to come in and talk to them so they knew I actually had a ride home.

She wanted to valet park my car and I didn’t understand why when you could park yourself for free. She wasn’t paying for it. I always feel weird about valet parking. It’s a Hospital, you don’t need to valet park. This annoyed her further.

She didn’t want to come back with me while I waited for them to take me into surgery. One of the nurses must have said something to her because she eventually came back to sit with me. It was a mistake.

She was showing me pictures of my nephews. I love them more than anything. I didn’t know the older one spoke in front of the Mayor and 300 people on behalf of the Little League. They looked so grown up. Of course I started to tear up.

My sister said “You know you can come over any time and see them”. I looked at her with my mouth open. I then said “I have to wait for your husband to leave the house first?”. She didn’t answer right away. Then she said “Neither one of us like your behavior or how you don’t take responsibility for anything you say or do”. That was the beginning of the end.

The anesthesiologist came into the room to talk to me while my sister was there. He came back after she left. He asked if I was okay. I told him I was fine. He said he was asking because I have a history of not wanting to come out of the anesthesia.

Nothing went well. They blew a vein in my IV, one of the stents became embedded and encrusted, someone taped my top lip to the breathing tube and didn’t realize it until they pulled it out taking the skin of my lip with it, and they couldn’t wake me.

After 3 hours I woke up. The anesthesiologist came in again. He said that he knew I was upset before going under and that it can’t happen again. He said at some point I’ll stay under because of my Conversion Disorder diagnosis. When I’m stressed, anxious, or sad I don’t always have control of neurological functions. It’s scary.

All of this made me realize the people around me are not going to change. I have to change how I react, my environment, and how I cope. I also need to recognize toxic people and situations.

TO BE CONTINUED…..be5d9e9599909984881e21c7036e306e

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TO MY MOM

It’s been 10 years since you passed away. It hasn’t gotten any easier. I still can’t bring myself to visit your grave. The rest of the family make comments about this. I don’t care.

You would be disappointed with us. I know you would. The petty fighting and grudges we hold against each other. Some things can’t be forgiven. You could always forgive and that’s why we loved you.

The one thing I had a problem with was your enabling everyone around you. I know it came from love but you never realized when someone wasn’t being truthful or sincere. Maybe I had been around too many liars, cons, addicts, and thieves so I spotted it easily. It would take years after your death for people to believe me.

There’s nothing worse than your family thinking your “too dramatic” or “making stuff up” all the time. One thing I don’t do when I’m sober is lie. Actually when I drank I was too truthful and that got me into trouble too.

When I first saw you in that hospital room I felt like I wasn’t in my own body. I was outside of it watching as it all happened. I didn’t feel anything for a long time. I somehow knew if I did it would end me. It almost did anyway.

Months later I found myself in the bathroom at work screaming into a bunch of paper towels. I couldn’t move or stop crying. All I could see was your face, eyes open and blank, bloody foam that wouldn’t stop bubbling from your mouth. All I heard were nurses laughing and Dad wailing like a wounded animal. I didn’t want to remember any of it.

Your oldest granddaughter decided to dedicate many tattoos to you and acts as if she was the only one who lost you. Her mother visits your grave often. Your granddaughter also decided to write me and say some of the most hurtful things I’ve ever had said to me.

She has replaced J as number 1 on my shit list. I’d rather be punched in the face than have someone say what the things she said. But she’s found God so I guess she thinks it’s okay to make someone feel like dirt. It’s okay to tell them they should’ve killed themselves because they are waste of space and their own mother didn’t love them as much as she loved other people. It was 3 pages of this crap.

I hope you don’t know what’s going Mom because you would be as hurt and angry as I am. Dad finally told me what you really thought today and you weren’t fooled after all.

You are MY MOM I took care of you and loved you. I think about you always and miss you often. I’m letting go of the toxic people. I don’t have the time to help people who don’t want to be helped. From now on I’m helping myself and Dad from time to time. I love you.11059761_10207494279902008_1407885758767048615_n


THERE’S A DIFFERENT GENERATION OF ADDICTS NOW THAT ARE HARDER TO REACH

I had the name of the street the apartment was on when the paramedics revived you. I drove up and down it for hours, holding my breath, hoping to see your face. I didn’t.

It scared me to read your posts on Facebook. I knew you were in trouble. I knew because we think the same.

The problem is this new generation of addicts with mental health issues think they’re the first ones to ever have these thoughts or do what they do. They’ve been raised to think everything they do is special and unique. I’m sorry but it isn’t. This is the problem.

Your parents think a week in detox makes you okay. You get out, they give you a big hug and send you on your way. They attend nightly meetings on how to “cope with their addicted child” while you’re back on the street again repeating everything you did the week before.

The mental health part is usually ignored or only touched on briefly because no one wants a child with a mental illness. A child that’s an addict is better. The shame of your child having both would be too much.

The parents created the problem. At least the parents I’m referring to did.

I offer my help multiple times over the years only to be told “No, she’s fine. Focus on yourself.”

This was my last time reaching out. My heart can’t handle watching a beautiful young girl slowly die any longer. I’m tired of biting my tongue and taking abuse from other family members for trying to help. So I’m done. I’m letting go.

I can’t spend what time I have left worrying about people who don’t want or need my help or even want me in their lives.

I laughed for the first time in a long time the other day. I talked to my best friend. The only one who ever really understood me. I had to tell her about my health and I wanted her opinion on making my twin sister my medical proxy. She agreed that I shouldn’t. If I can’t trust my sister because of the way she threatens me or uses my illness against me than I shouldn’t be giving her any control over any areas of my life.

I have the hardest time letting go. I have to get past it if I want to follow through with my road trip to Texas after my surgery. There’s just one thing I left to do and W agrees I should go for it. Granted W is a little out there like me which is why I love her. But she has always accepted me for who I am no matter what. d94bebff677aa86360da53bcc7ab03eb--addiction-quotes-addiction-recovery


I AM LOST

A Urologist is a doctor who specializes in the diagnosis and treatment of diseases of the kidneys and urinary system in men and women. They also perform surgery and treat tumors, cysts, and stones.

A Nephrologist is a doctor who specializes in the diagnosis and treatment of diseases of the kidney such as inflammation of the kidney, Chronic Kidney Disease, high blood pressure, and Diabetes. They prepare patients for the reality of dialysis and kidney transplant. They do not do surgery.

Patients with early Chronic Kidney Disease need to be evaluated on a regular basis to prevent complications from nephro toxic drugs, dehydration and low Vitamin D. Many prescription medications need to be adjusted with CKD because they build up in the body’s system.

Common eye problems for people with kidney disease include dry, red, sore eyes that feel gritty. This happens because of impaired blinking and tear formation causing dry eyes. Extra calcium and phosphate can also settle in the eyes causing irritation. Kidney disease can also cause pressure behind the eye making vision blurry. Low blood glucose also causes blurred vision and confusion.

My Glucose levels have been consistently low. My last 3 results from 3/16 to 3/17 were 64, 68, and 67. These were done without fasting so I had breakfast which included sugar, cinnamon, and chocolate and coffee with sugar and Mocha Almond Fudge creamer.

When I’ve gone to Nephrologists they tell me I need a Urologist. Urologists can’t answer my questions and tell me I need a Nephrologist or another specialist.

I asked if changing my stents would help with my fatigue and vision. The Urologist said my stents shouldn’t be the reason I’m tired and have blurred vision. I’m in Stage 3b of Chronic Kidney Disease which CAUSES CONFUSION, FATIGUE, AND CHANGES IN VISION.

No one knows why I have kidney disease and they are not lining up to find out. I can’t get a Primary Care Doctor because I have too many health problems with “unknown” origins. This makes me a “difficult patient” so they refuse to take me. Then the specialists I have complain because I don’t have a Primary Care.

SICK OF IT!

BRAINSTORM

I’ve been thinking about my niece a lot. I want to drive cross country. I’m thinking I should take her with me. I’ve been sober 10 years, I have experience with heroin addicts, I know more than anyone should about mental health, I’ve been where she is, she would be locked in a fast moving vehicle with me, she would have to be responsible for some of the driving, it would give her something to focus on and get her away from a toxic environment, I could leave her in the desert if she gives me trouble (joking kind of), I really feel in my gut this would be good.

No one else in family will think it’s a good idea. I can already imagine all the negative comments. She’s 20, I’m 45, I believe I can honestly help someone I love. I haven’t been allowed to do so for some reason. I don’t know if her mother doesn’t trust me or if it’s something else but it’s better than letting her live on the streets.

I don’t know how you could refuse to let me try to help but kick her out and let her be homeless. Another week where all I did was cry. I heard nothing more about the situation until she overdosed and it made the news. I’m sad and a little angry.

If it is a bad idea let me know. Maybe I’m delusional or grasping at straw.


FOR ALL OF US WITH ADDICTIONS AND MENTAL HEALTH ISSUES

My Grandmother on my Mom’s side drank a lot when she was younger. She also had mental health problems that were never diagnosed. I know my Grandfather drank but I don’t know if it was ever a problem. I don’t know if there was mental illness on his side of the family either.

My Dad’s father suffered from Social Anxiety and General Anxiety. As far as I know there was no alcoholism or drug abuse from either parent.

My mother and father were both alcoholics. They each stopped drinking on their own when I was around 8 or so.

My mother had several “breakdowns” and was hospitalized a few times for them. She was never diagnosed. She would spend weeks in her bedroom sleeping and then be up laughing and cleaning the house.

My father has always had severe anxiety. My mother actually spoke for him in public places. He used alcohol to fit in and be able to socialize. He’s always had a quick temper.

My brother’s father was an alcoholic and committed suicide while my mother was pregnant with him.

My brother is an alcoholic. He also likes to gamble. He goes through periods where he thinks he’s King of the World and is extremely cocky. He also has periods of depression where he isolates himself, drinks and listens to his favorite music really, really, loud. He has bouts of anger which has led to physical altercations from a young age. He has refused to see anyone.

I am an alcoholic. I have been in remission for almost 10 years. I am also Bipolar and have Social Anxiety. I drank for over 20 years with people I normally never would’ve kept company with. It caused a lot of damage physically and emotionally.

When my brother met his wife he was so in love. The entire family loved her. But we also knew how my brother could be. He was prone to jealousy and self-sabotage. It wasn’t long before there were problems.

We tried to convince her to leave him. She refused. When he asked her to marry him we tried again to get her to leave him. She refused. There’s only so many times you can warn a person. When someone’s own mother begs you not to marry her son I think you should listen.

They drank and smoked pot together often. They were together 7 years before having their first child. I knew by the time she was 2 years old that there would be problems.

My sister in law stopped drinking but still smoked pot. They fought constantly. There was never enough money. Baby number 2 was on the way.

I can’t count the number of times my sister in law called us crying about my brother. I can’t count the number of times my mom had to go to their house and calm things down or pick up my sister in law and the kids on the side of the road because my brother was drunk and she refused to be in the car with him. She also called for money. Baby number 3 was on the way. She still wouldn’t leave.

Their oldest daughter started to self harm at 14. She then started drinking and using drugs. She was a heroin addict by 17.

Their middle daughter started to self harm at 13. She started drinking and using heroin by 16.

In the beginning of April she overdosed in an apartment with 3 other people. The paramedics were already there helping the other 3 that had overdosed. This will be her 7th time in detox and rehab. I don’t think I’ve ever cried so hard in my life.

Both of my brother’s daughters have been diagnosed with mental illnesses. Both became heroin addicts. The oldest one has been clean for a few years now but the middle one is slipping through cracks. Her mother chose the “tough love” route with her which I don’t agree with at all.

My brother is divorced now and I don’t even know how much he sees his children. His 20 year old overdoses, it makes it on to the news, and he’s no where to be found.

I have offered to help with her numerous times but my sister in law won’t allow it.

Who knows more than someone who has been where she is? Someone with 10 years of sobriety and mental illness?

The people she has been seeing are not treating her mental illness AND addiction. They’re only treating the addiction and that’s the problem. They are not asking why she feels the need to be numb, or what was it that made her start in the first place.

If it wasn’t for Narcan I would be attending her funeral. Something has to give.reverse-drug-overdose_copy


HAVING AN EXPIRATION DATE

I’ve been past my “suicide” phase for years now. I still think about it on really bad days but not like I used to when I self-medicated with alcohol. When I self-medicated with alcohol I didn’t just think about it. I’ve been sober close to 10 years now.

Seeing the results of my blood work I was scared. I didn’t know my kidneys were getting worse so fast. They use your GFR to determine when you should go on dialysis or go on the list for a kidney transplant. When the number hits 30 your Doctor starts preparing you for your options.

My GFR was a 40 one year ago. I kept putting off going in for surgery to have my ureteral stents changed. Part of the reason was the Depressive Episode I was in for a very long time. The other part was just fear. You know when something is wrong with your body. I knew I was losing weight again but there was some swelling in my feet and ankles. The color of skin is the same as chalk but with dark circles under my eyes. I’ve lost muscle mass specifically in my temples. I didn’t notice how bad until this morning. They are so hollowed out I could collect rain in them. I’ve been a little short of breath and having trouble doing simple tasks.

I’m pretty sure I won’t make it on a transplant list. I checked again today. If you have a mental illness, a past history of drug/alcohol abuse, or an autoimmune disease, you usually have a hard time getting on the list. I have all three. I have twin who could donate her kidney but before I could ask I was told she wouldn’t. She had to think of her children. Pretty sure her husband had a big influence on this decision.

Because no one knows why I went into Kidney Failure, or why my kidneys are getting worse, no one is sure about dialysis. My other option is to have a tube coming out of each side of my back just under my shoulder blades. The tube would drain fluids out of my system and goes down each leg. Someone has to learn how to clean and change the drains which I don’t have anyone to do this.

Before I make any big decisions I’ll go to my appointment on Tuesday and see how much longer I can keep the stents. If they don’t send me to the ER then I’m going on a Road Trip to Deep Ellum, Texas. I don’t care what anyone says. I have limited time to do what I wanted to do. So I’m going to try it. What’s the worse that could happen? lol


SHOW ME HOW TO LIVE

I admit I’m afraid. I also admit it’s my own fault. I kept putting it off. I even might of done it on purpose.

The Doctor that changes my ureteral stents wanted to see if I could go a year this time but if I had any problems I should come in sooner. I started having problems around the 6th month. I didn’t call or make an appointment. I ignored the pain, the dizziness, loss of appetite, some swelling in my hands and feet, headaches, change in vision, etc. My Bipolar medications were not working correctly either. I’ve been more than depressed for some time now.

I went online to see exactly when I last had my stents changed. I could also see lab results and notes from surgery while I was there. I wasn’t happy.

When I first went to this Doctor he had to exchange the stents put in by a Doctor that didn’t like me very much. Normally I would think I was being dramatic but I brought my sister with me to 2 of my appointments.

My twin is odd in her own way. She can ignore me and say horrible things but if anyone else does it they better run. She’s gotten physical with a few people on my behalf. Nothing major, she grabbed someone by their lab coat and pushed another person out of the way who wouldn’t let us leave the Hospital.

So when she witnessed how this previous Doctor treated me in his office she wasn’t happy. I wasn’t either. He insulted me in front of the entire team about to operate on me and then told them I was “a difficult patient” and they should be happy I didn’t “bring my guard dog” referring to my sister.

When the Doctor I have now went to change the stents he found the guidewires had advanced up both ureters to both kidneys. On the left side the had crossed over one another. This caused scarring in the ureters.

I also didn’t know my GFR has been declining or that it’s as low as it is. I was told it was 67.

The last three results have been 48, 45, and 40. When it get’s to 30 you’re supposed to start discussing dialysis or transplant.

As far as a kidney transplant goes I highly doubt I would get one. My Dad is on dialysis already and my twin sister has already said no.

If you have a mental illness, have to take specific medications, have a history of alcoholism or drug addiction, have an autoimmune disease, you most likely won’t be considered. I can check all of these boxes.

I have things on a Bucket List left to do. I want to have serious conversation with Dave Navarro. We have a lot in common. There are places I want to see. I would like to see Steven Tyler in concert one more time. I want to spend a day with a pack of wolves. There are so many places I wish I could travel to. Places filled with art, music, food, lights, people, where I can walk around and just take it all in.

 


IF NOTHING CHANGES

Sitting here day after day with little human interaction is becoming both difficult and easier to do. When I do get the chance to talk to someone I actually get a sore throat if it’s for longer than 10 minutes. Luckily for me it rarely is.

I want to change my situation but I’m scared to death to do so. I also feel guilty about leaving my Dad.

I try to remember that he has already lived a full life. He’s travelled all over, done some pretty exciting things, found and married his soulmate, had two children with her, lived, laughed, and loved her for over 45 years. He has 5 grandchildren that love him but he doesn’t see them because he feels guilty that my mom isn’t here to be with them. I find this ridiculous. I also think it’s more about his hearing than anything. He can’t understand what they’re saying so he doesn’t interact with them.

His hearing has become a huge problem. He refuses to do anything about it. He used to love to watch movies with me. He stopped a few years ago because he couldn’t hear the dialogue no matter how loud it was. He has a habit of just agreeing to what a person is saying when he has no idea what was said. This isn’t good when it comes to his dialysis and health. I finally called the dialysis center and told them he can’t hear what they’re saying and is just agreeing with them. They had no idea after the years he’s been there.

I also told them that he isn’t following a renal diet at all and if he says he is he’s lying. I gave them the correct dosage of Prednisone he’s taking because he told them 10mg when it’s 40mg. They need to know these things!! He get’s pissed off and leaves early because his TV isn’t working. It isn’t about the TV, it’s about him feeling anxious so bad he HAS to leave. I told them this also.

I did this because for the last week he’s come home with feet and ankles so swollen they look like wax. They don’t look real. That’s how mine were when I went to the ER. Would he listen? No. Would my sister answer her phone? No.

I’m afraid if I change my environment things will stay the same. I’ll start to talk to someone and they will fall asleep while I’m talking or walk away. Both my dad and my sister fall asleep while talking to me. My dad walks away often.

Maybe I should record my voice reading a book and sell it as a natural sleep aid.

There are no words to describe how it feels when you’re ignored, dismissed, or on the opposite end yelled at for things beyond your control or still held accountable for mistakes you made 20 years ago.

Sometimes I don’t know what I want. I’ve seen the worst of humanity, I’ve been on the receiving end of  humanities worst, but for some reason I still crave human interaction. I still have hope. I just don’t know how much longer that little bit of hope will last.1c69ece744ce08e16a8cfc698acf0e23


A HOLISTIC APPROACH TO SHAME

I know I’ve gone overboard with Social Media over the last 6 months. I usually think before I type but I haven’t done that in awhile. When I realize what I’ve written doesn’t sound right so I try to delete it but sometimes I can’t.

I made a comment on an Instagram post that I guess came across as odd. Someone replied “Are you okay?”. When I read it in my Notifications I had no idea why anyone would ask me that. Then I went to the comment.

I did sound manic and all over the place. I was embarrassed and ashamed. I then noticed another person had replied and I felt angry on top of everything else.

The woman is supposedly a “Mental Health Counselor” and she suggested I should “take a Holistic Approach to your mental illness instead of dangerous medications”.

I wanted to respond but since I am now back on the correct dose of medication I knew that it wasn’t worth it and it wasn’t right to have a discussion on someone else’s Instagram page. I let the matter go.

NEED TO KNOW

I don’t want to give a history of my health to every single person in order to explain my emotions, behavior, mood, or physical symptoms. I feel like I have to or people will assume the worst. The problem is they assume the worst anyway.

THE NATIONAL CENTER FOR COMPLIMENTARY AND INTEGRATIVE HEALTH

The National Center for Complimentary and Integrative Health is the main government agency for investigating non-traditional treatments specifically for mental illness.

  1. Complimentary methods where non-traditional treatments are given in addition to standard medical procedures.
  2. Alternative methods of treatment used instead of established treatment.
  3. Integrative methods that combine traditional and non-traditional as part of a treatment plan.

NATURAL PRODUCTS

Research is still lacking when it comes to the safety and effectiveness of Complimentary Treatments.

Omega 3 Fatty Acids: These may help decrease the risk of chronic schizophrenia but what most people do not know is that this is only the case for young people experiencing psychosis for the first time.

Folate/Vitamin B9: The human body can’t make this on it’s own, some people with mental illness have low Folate levels. The FDA has approved one form of Folate as an add on not a primary treatment for use in depression.

Medical foods, mind and body treatments and vitamins fall under these categories also.

VITAMINS: Anyone on a prescription medication should be cautious when taking vitamins. Vitamins can make some prescription medications less effective or toxic.

40% or more of Americans treat themselves with alternative or “Holistic” medicine without professional supervision or disclosing it to their Psychiatrist/Primary Care Doctor. Many patients use Holistic medicine while taking prescription Antidepressants which can cause dangerous interactions.

THINK BEFORE YOU SPEAK

Bipolar Disorder is a brain disorder.

MRI scans of people with Bipolar Disorder are similar to each other but significantly different from people without Bipolar.

When Bipolar Disorder goes undiagnosed and the person is given the wrong medication and self medicates it makes them much more difficult to treat when they are diagnosed.

I remember when my Mom was diagnosed with Lung Cancer. I was devastated. The first thing people said was “Did she smoke?”.

If she did smoke, did that mean she deserved to die a horrible death? People don’t think before they speak.

No one mentioned any Holistic medicine instead of Chemo and Radiation.

When my kidneys failed and I was in the ER, not one person mentioned “Holistic Medicine” as an alternative to saving my life.

Mental Illness is no different, at least for me it isn’t.

I may not always be able to edit myself online but face to face it’s much easier.

It’s easier because I never really talk to anyone. When I get the chance I get too excited and I start to stutter. The shame and embarrassment kicks in.

I would like to know 1 entire day without feeling shame. I know what I’ve put my family through. If I thought vitamins, yoga, meditation, would make it better believe me I would be doing it. Actually I’ve done it.Zen stones in water

 


PUTTING YOURSELF OUT THERE AND REJECTION

I talked to a woman I worked for the other day. I felt good that day, I don’t know why. I actually took a shower, did my hair and make up. Which is good because she’s one of the best Hair Artists I’ve ever seen or known. Yes, I said Artist.

I’ve seen her transform a person to the point they sit there and cry. She gets the clients no one else can handle. The people with curly frizzy hair that everyone wants to throw gel on and send them home with a wet head.

When I first met her I wasn’t expecting much. At the time I had bleached blond hair that was very curly and frizzy but also had some weird straight areas. I’m one of the people that cried. She was the first person to ever blow dry my hair straight.

I think I asked if she could live with me. She inspired me to go to Hair School (where you learn nothing you need to) she’s the one that taught me everything I needed to know.

The problem was the Hair industry is competitive, and you have to be outgoing. You can’t have severe Social Anxiety and succeed in that type of atmosphere. It became too much for me. Her clientele had money and thought it was ok to treat me like hired help. Some of the women wouldn’t let me near them because of my weight. I have pretty good hearing and could hear them whispering about me. One made a joke about how small the salon was she was surprised I could move around. I wasn’t that large. I couldn’t say anything because the customer is always right. I was good enough to bring them coffee and tea though.

I loved the woman I worked for even though she was tough. I loved watching her work and her heart was in the right place. I wasn’t in the right place mentally when I left. I’ve talked to her about it since.

When I saw her the other day she told me to come by the Salon that her sister would want to see me. She also said she wanted clean up my hair a bit and started following me on Instagram.

Of course having Social Anxiety I’m having a problem calling the Salon or going there. I sent her a message on Instagram about a beautiful color she did but she didn’t respond. I also sent her a message about a necklace I made because it has the some colors that would match her new Salon she’s opening. (I didn’t word it like that) She didn’t respond to that either.

This is why I don’t like putting myself out there. I over think everything and start to think she was just being polite and she really doesn’t want me around, just like everyone else.9613332b73db683abf187a2df501d22276270eae18b5d1551612a2892ca36b60.jpg


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