I AM LOST

A Urologist is a doctor who specializes in the diagnosis and treatment of diseases of the kidneys and urinary system in men and women. They also perform surgery and treat tumors, cysts, and stones.

A Nephrologist is a doctor who specializes in the diagnosis and treatment of diseases of the kidney such as inflammation of the kidney, Chronic Kidney Disease, high blood pressure, and Diabetes. They prepare patients for the reality of dialysis and kidney transplant. They do not do surgery.

Patients with early Chronic Kidney Disease need to be evaluated on a regular basis to prevent complications from nephro toxic drugs, dehydration and low Vitamin D. Many prescription medications need to be adjusted with CKD because they build up in the body’s system.

Common eye problems for people with kidney disease include dry, red, sore eyes that feel gritty. This happens because of impaired blinking and tear formation causing dry eyes. Extra calcium and phosphate can also settle in the eyes causing irritation. Kidney disease can also cause pressure behind the eye making vision blurry. Low blood glucose also causes blurred vision and confusion.

My Glucose levels have been consistently low. My last 3 results from 3/16 to 3/17 were 64, 68, and 67. These were done without fasting so I had breakfast which included sugar, cinnamon, and chocolate and coffee with sugar and Mocha Almond Fudge creamer.

When I’ve gone to Nephrologists they tell me I need a Urologist. Urologists can’t answer my questions and tell me I need a Nephrologist or another specialist.

I asked if changing my stents would help with my fatigue and vision. The Urologist said my stents shouldn’t be the reason I’m tired and have blurred vision. I’m in Stage 3b of Chronic Kidney Disease which CAUSES CONFUSION, FATIGUE, AND CHANGES IN VISION.

No one knows why I have kidney disease and they are not lining up to find out. I can’t get a Primary Care Doctor because I have too many health problems with “unknown” origins. This makes me a “difficult patient” so they refuse to take me. Then the specialists I have complain because I don’t have a Primary Care.

SICK OF IT!

BRAINSTORM

I’ve been thinking about my niece a lot. I want to drive cross country. I’m thinking I should take her with me. I’ve been sober 10 years, I have experience with heroin addicts, I know more than anyone should about mental health, I’ve been where she is, she would be locked in a fast moving vehicle with me, she would have to be responsible for some of the driving, it would give her something to focus on and get her away from a toxic environment, I could leave her in the desert if she gives me trouble (joking kind of), I really feel in my gut this would be good.

No one else in family will think it’s a good idea. I can already imagine all the negative comments. She’s 20, I’m 45, I believe I can honestly help someone I love. I haven’t been allowed to do so for some reason. I don’t know if her mother doesn’t trust me or if it’s something else but it’s better than letting her live on the streets.

I don’t know how you could refuse to let me try to help but kick her out and let her be homeless. Another week where all I did was cry. I heard nothing more about the situation until she overdosed and it made the news. I’m sad and a little angry.

If it is a bad idea let me know. Maybe I’m delusional or grasping at straw.

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About darie73

I have lived with Bipolar Disorder since my early teens. I have lived with Social Anxiety Disorder for even longer. I self-medicated with alcohol for over 20 years, that's how long it took to get a diagnosis. I'm open and honest about my mental health so hopefully one day the system will change. View all posts by darie73

One response to “I AM LOST

  • manyofus1980

    i wouldnt do it. it would be dangerous. and you have to think of your own health. and the emotional toll it would take on you. i know you mean well. and obviously shes struggling and you dont want to see that. sending hugs your way. xo

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