CELIAC DISEASE (What You Think You Know But Don’t)

Celiac Disease is often misunderstood, even in the Medical Community. It’s difficult trying to explain to someone who should know why you can’t take a specific medication. The Pharmaceutical companies are regulated by the FDA and are supposed to disclose if they use Gluten as a binder in their medication. This isn’t a perfect world and not everyone will tell the truth. Generics are not under the same guidelines as Brand Name medications and are not monitored as closely by the FDA. These are facts.

CELIAC DISEASE

Celiac is a serious genetic autoimmune disorder where the ingestion of gluten leads to damage of the small intestine. When your small intestine is damaged nutrients can’t be absorbed.

Celiac has been linked to various other autoimmune disorders and cancers.

To get a true diagnosis you should have blood test first and then a biopsy. The biopsy is crucial.

A LONG LIST OF SYMPTOMS~ WHAT I HAVE WILL BE IN ITALICS

  • Bad breath
  • Gum Disease
  • Mouth Sores
  • Swollen/Bleeding Gums
  • Erosion of Tooth Enamel
  • Early Menopause
  • Swings in Hormone Levels
  • Heavy Painful Periods
  • Infertility
  • Swollen bladder/cervix
  • Acid Reflux
  • Bloating
  • Constipation
  • Diarrhea
  • Nausea
  • Loss of Appetite
  • Stomach Pain
  • Ataxia
  • Back Pain
  • Joint Pain/Stiffness/Swelling
  • Leg Cramps
  • Anemia
  • Deficient in Vitamin D
  • ADD
  • Anxiety
  • Brain Fog
  • Memory Loss
  • Asthma
  • Brittle Nails
  • Bruising
  • Dark circles under the eyes
  • Pale skin
  • Burning scalp
  • Dandruff
  • Eczema
  • Bladder Infections
  • Blurred Vision
  • Chills/Fever
  • Chronic Fatigue
  • Vertigo
  • Hair Loss
  • Headaches
  • Hypothyroidism
  • Seizures
  • Sinus Pressure
  • Irregular Heartbeat

Celiac can also cause you to have a low white blood cell count, arthritis and osteoporosis.

When you’ve been diagnosed with many other disorders/diseases and there’s an overlap of symptoms it’s extremely hard to know what’s causing what.

My twin also has Celiac and despite being Gluten Free like I am still suffers the symptoms. This happens to some people and it’s called Refractory Sprue. When this happens your chances of different types of cancer go up.

It’s difficult being a walking medical mystery. What do you do when no one has answers for you? I know my medications have not been working and have said so for the past year. I’ve asked every doctor if it’s due to Celiac, Kidney Disease, Absorption Problems, and not one can answer me. I get worse every single day. My Dad is sick of hearing about it. My sister is sick of hearing about it and thinks I’m being dramatic and I just want attention. I don’t get attention. I’m ignored. If no one knows the answer they don’t want to deal with me. So I hide in my room and hope it all goes away. The pain is bad in my sides it’s like a hot poker constantly stabbing me in the side up to the bottom rib. This started after my last stent exchange almost like he didn’t hook it on right. I’m not saying a word. I’m done with it.

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