I went to the Urology Specialist at Mass General yesterday. It was a complete waste of time. I have never been so disgusted in my life. Even my twin sister was crying and ready to slap a bitch.
The Dr. had no idea why I was there even though all of my info had been sent to her ahead of time. She didn’t know how to work their new computer system. As she has a scan of my kidneys and bladder on the screen where I can see and she can see, she is making noises to herself and comments. Comments like the following “What a mess!, Oh my God!, What is this?”. I was getting nervous at this point.
She said “You have a LOT going on here. The doctors on your case are very good and did everything I would’ve done. You should have a biopsy where they go through your back though.” I asked her if that was something she would do. She said she wouldn’t take over my case without starting from the beginning and re-doing all the tests and biopsies they had already done. I told her Medicare probably wouldn’t cover that because they had already been done and she said I would have to get pre-approval. No mention of the many financial aid programs Mass General offers. Plus if she thought my doctors did everything right why did she have to re-do everything? I never got an answer for that.
She told me I should see a Nephrologist. I asked if I should see one around Mass General? She said it didn’t matter. She didn’t even try to recommend one. At this point I’m crying. I told her I’m tired and in pain and I really would like to know what’s going on. She said “Of course you are I would be too. You’ve been in Kidney Failure twice, your kidneys are not working the way they should, the right one is barely working. You have to get this figured out before more permanent damage is done.” DUH! That’s why I was there!!!
So it was a wasted trip where I’m worse off than I was before. I have no idea where to go for help when no one wants to help me. It’s even worse because it’s interfering with my Bipolar meds and I’m a mess. I don’t know what to do. I feel like giving up but I can’t.